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As MSUD families from Israel have attended past symposia, I have tried to get an Israeli physician to author an article for our newsletter. Along the way, I made a friend.

My family visited Israel this December. Prior to going, I contacted Dr. Hanna Mandel, at the Rambam Institute in Haifa. Dr. Mandel trained here in the US, and has been a leader in educating professionals and families about MSUD in Israel. I asked her if I would be able to contact her should Hannah become ill during our trip. She kindly gave me all of her contact information, including her cell phone number. Shortly before we left, I received an email from her asking if we would be able to meet. She said she would like to organize a meeting with a group of families. How could we say no? Dr. Mandel and her husband met us at a central location, and she drove us to a Druze village in northern Israel. We were unprepared for the hospitality that greeted us. We were welcomed into the home of a MSUD. One entire table was covered with homemade delicacies, and a second table was covered with low protein goodies. Six families convened from all over northern Israel to meet us. They all wanted to know how we treat MSUD in the US. Most of the children looked healthy and happy. One girl had been diagnosed late and had obvious physical impairments. None spoke more than a few words of English, but the kids all got along fabulously. In fact, 1 girl Hannah’s age invited her to sleep over! And she did! The mom told me the next day that it was a wonderful experience for her daughter, and I know it was for mine as well. Dr. Mandel works tirelessly to keep her patients healthy. She tries to get them to visit her monthly for blood tests. Often she travels to them. The dietitian who works with her uses the exchange system for dietary leucine. From what I saw of this group, they’re doing a great job.

 
Nada, Yuval, Hannah, Shada and Ramzi enjoy a feast of low protein food in Israel
Israel is more diverse than many think. In our group of 6 families, 3 were Druze, 2 were Arab, 1 was Christian, and 1 was Jewish. As we all know, MSUD unites us all. We are one family in our struggle against this disease.

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The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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