Tyler for Life Foundation, Inc., a newborn screening awareness organization, recently launched a national campaign, "Handout America," during which volunteers supply pamphlets entitled "A Parent's Guide to Newborn Screening." These pamphlets are to be displayed in hospitals, doctors' offices, clinics and any place that serves children and families.
The Tyler For Life Foundation will be collecting quilt panels for a NBS Unity Quilt from families with children who have disorders detectable through newborn screening. This new project will involve all the families in a unified effort. The quilt will allow the families of children with these disorders to celebrate and share the lives of their children.
The mission of the quilt is to create a visual testimony of the most compelling symbol of newborn screening - the children touched by it. The quilt will be unveiled on Sept. 1, 2001 in celebration of NBS Awareness Month. To participate or learn more about the project, visit the Tyler for Life web site. You can also learn more about newborn screening, related disorders, and the Tyler for Life Foundation at tylerforlife.com or call 1-888-454-3383.