As I sit here reflecting on how much the care and treatment of MSUD has changed over the years, my mind goes back to 1978 when our son Keith was born. At that time very little was known about the care of a child with MSUD, especially during times of illnesses. I clearly remember on one of our many hurried trips to Children’s Hospital in Philadelphia, Dr. Marc Yudcoff commented that maybe not in Mary K or my lifetime but surely in Keith’s lifetime there would be a cure for MSUD.

Now, almost 40 years later, I believe we are on the brink of seeing a cure for MSUD. The medical field is moving rapidly, with more frequent articles in the medical journals describing gene therapy and other therapies with the potential to correct different disorders. I believe a cure for MSUD is not far behind.

As a Board, we are concentrating our efforts and resources on raising funds which will allow us to sponsor research projects looking for better treatment and ultimately a cure. Let’s not lose hope but continue looking forward to the day when special diets will no longer be necessary. Just thinking about that is very exciting!

Along with fundraising, our aim to support research means we need more volunteer help. You will see more calls for volunteers to help out with these projects. A special thank you to Susan Needleman for agreeing to contact clinics and medical centers with the express purpose of looking for MSUD families who may not know about the MSUD Family Support Group.

Just a reminder: If you are planning to attend the symposium, don’t forget to register. I hope to see many of you there. It’s always good to reconnect with friends and create new acquaintances. I expect to hear much valuable information on a variety of potential therapies. See you in Pittsburgh on the 28th – 30th of June.


The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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