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2020 MSUD SYMPOSIUM

Two years have passed and it is time for another MSUD Symposium! I am especially excited about this conference, because there will be a comprehensive review of MSUD research. Numerous researchers will introduce or provide updates on their projects in concise presentations. Besides research, the other topics that will be covered include medical and dietary management, liver transplantation, anxiety and depression , advocacy and fundraising. In addition to increasing your MSUD knowledge, you‘ll have opportunities to renew old friendships and meet new families.

Cost

The registration fee to attend the entire 3 day conference is $20 per person. The fee is to help defray symposium costs. This can be paid via PayPal when you register.

Hotel Reservation:

Make ReservationEmbassy Suites by Hilton Columbus Airport. The hotel is located 1 mile from John Glenn Columbus International Airport (CMH) and 6 miles from downtown Columbus. Hotel information:
2886 Airport Dr, Columbus, Ohio 43219
Phone 614-536-0500
Fax 614-536-0502

Hotel Rate and Accommodations: Room rate is $142 per night which includes breakfast for all of those staying in the room. Each room is a spacious two-room suite with a separate living area with pull out sofa bed. Rooms have 1 king bed or 2 queen beds, however, there are a limited number of suites with two queen beds in our block so make your reservation early if you need a double queen suite room. Accessible rooms are available on request. The hotel has a restaurant and there are numerous reasonably priced places to eat within walking distance of the hotel. Other hotel amenities include an indoor pool, refrigerator and microwave in each room, fitness center, business center, and free parking. There is also complimentary shuttle service to and from the airport.

Hotel reservations: You can make your reservation now! This special room rate will be available until June 3, 2020 or until the group block is sold out, whichever comes first. Reservations can be made by calling the hotel directly at 614-536-0500. State that you are attending the MSUD Family Support Group Symposium to receive the discounted rate. If you prefer to make your reservation online, you can do so through the MSUD website.

Meals: During the Thursday evening 6-25 registration /reception, dinner will be provided which will include regular and low protein pizza, salad and regular and low protein cookies. Breakfast buffet on Friday 6-26 and Saturday 6-27 is included in the cost of the room rate for all those staying at the Embassy Suites. Those not staying at the host hotel will need to provide their own breakfast on those mornings. Lunch on Friday 6/26 will be provided to all attendees. Low protein food options will be available. Dinner Friday evening 6-26 is on your own. If you have other dietary needs such as Kosher or gluten free foods, please contact me with that information.

Hotel check-in is 4:00PM and check- out is 12:00PM. Early check-in may be an option depending on room availability.

Attire: Comfortable, casual attire is appropriate for the entire symposium. Consider bringing a sweater in case the meeting room is colder than you prefer.

Child Care Activity Room: There will be a room available with activities/entertainment for children and there will be several volunteers to assist the children. However, there will be no babysitting services. Please keep this in mind as you plan your trip. Consider bringing a grandparent, teenager, or sibling to babysit your younger children. Older children, teens, and young adults are encouraged to attend the general sessions.

Shuttle Service: The hotel has complimentary airport shuttle service which runs from 4AM to 11PM. Use the courtesy phone in Baggage Claim or call the hotel directly at 614-536-0500 to request pick up at the airport. Catch the shuttle by following the signs “To Ground Transportation” from Baggage Claim.

Schedule

The conference starts Thursday evening June 25th at 7PM with registration and reception. The sessions will be from 8AM- 5PM on Friday June 26th and 8AM- 12N on Saturday June 27th. A liver transplant breakout hosted by University of Pittsburgh Transplant Team will take place on Friday afternoon from 1-3PM. You won’t want to miss the family fun night/social event at the hotel on Friday evening from 7PM-10PM. A complete schedule will be available on the MSUD website in the near future.

Confirmed speakers:

  • Kevin Strauss, MD, Clinic for Special Children
  • Jessica Scott-Schwoerer, MD, Waisman Center
  • James Wilson, MD, PhD, UPenn Orphan Disease Center
  • Jiaming Wang, PhD, UMass
  • Jenny Greig, PhD, UPenn Orphan Disease Center
  • Max Wynn, PhD, UT Southwestern
  • Diana Shellmer, PhD, Univ of Pittsburgh
  • Stephen Strom PhD, Karolinska Institutet
  • Arvind Ramanathan, PhD, Buck Institute
  • Will Andrews, MD, Acer Therapeutics
  • HemoShear Therapeutics representative
  • Synlogic Therapeutics representative
  • Heather Bausell RD, LDN, Lurie Children’s Hospital of Chicago
  • Kyle Soltys MD, Children’s Hospital of Pittsburgh
  • James Squires MD, Children’s Hospital of Pittsburgh

Travel Assistance:

Again we received a generous donation from the United Service Foundation to assist with travel expenses. If you would like to attend the symposium and need financial assistance, you may apply through the MSUD website or by sending an email to This email address is being protected from spambots. You need JavaScript enabled to view it. or by contacting Sarah Dworcan at 718-406-7185 or Susan Mays at 206-412-1967

If you, or a family you know would like to apply for help please have them apply by filling out this form. If you have any questions you may message us through facebook or email us at: This email address is being protected from spambots. You need JavaScript enabled to view it..

Don’t forget to complete your online registration and make your hotel reservation!

If you have any questions, feel free to call me at 740-972-5619 or email at This email address is being protected from spambots. You need JavaScript enabled to view it..

See you in Columbus!

Sandy Bulcher, President MSUD Family Support Group and Symposium Coordinator

Event Details

Event Date Jun 25, 2020 7:00 pm
Event End Date Jun 27, 2020
Last date to register Jun 24, 2020
Price $20 per person
Location Embassy Suites Columbus Airport

Ticket Information

Ticket Type Price
MSUD Symposium 2020 $20.00

CHANGE THE LIVES OF MSUD ADULTS AND CHILDREN

The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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