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At the Symposium Mary Ann Peters explained her problem finding an appropriate container for her daughter to use to carry formula to school. She wrote and expressed her appreciation for the suggestions she received. Sending the measured dry formula with Leanna, who then added water at school, solved all her leaky lunch box problems. Her daughter is a little too young yet for another mother's solution. This mother leaves a can of formula at school and her daughter makes it at school each day.

Mary Ann still has a problem. "How do I stop kids from telling Leanna her formula stinks? I hope there is some research going on to make the formula smell and taste better. It will make life easier for her." Most parents certainly share this concern.

Shayla Brubacher has been experimenting with many different methods and containers to try to eliminate the smell while drinking and prevent leaking when she shakes it to mix it. Her Uncle gave her a large, covered, Coca Cola drinking cup, tightly capped with a straw and guaranteed it would not spill. That night, loaded with luggage, she was waiting to take the train from Pennsylvania to Indiana. Unnoticed at first, the cup hanging from her hand was dripping a steady stream on someone's luggage. She was so glad she had coke in it instead of her smelly, sticky formula! She was quite discouraged after so many disappointing experiences. (This spring she spilled a few drops of formula on a friend√Ęs purse and the friend says she can still smell it).

Recently the Glenn Wenger family gave Shayla a cup that really works. It is in the shape of a crayon with a straw in the hole at the top. Now Brenda Wenger says Rubbermaid makes a pint size cup with ounce and milliliter markings and a spill-proof, screw-on lid with a two-piece straw. They are sold individually and with the Litterless Lunch Kits. If you are having a problem weaning your child from the bottle or the child is refusing formula, look around for the many new ideas on the market. The smell of the formula seems to be a major factor in its rejection.

Shayla is into recycling and wants to remind those who use formula from cans to check to see if they are aluminum. Her MSUD 2 formula cans (but not the lids) are aluminum.

CHANGE THE LIVES OF MSUD ADULTS AND CHILDREN

The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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