If you still have questions about MSUD after reviewing the information on this website, contact the appropriate person on this page.
Resource Persons |
Medical Advisors |
Nutritional Advisors |
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| For organizational information, printed material or addition to our mailing list: Sandy Bulcher, President Powell, Ohio 740-972-5619 This email address is being protected from spambots. You need JavaScript enabled to view it. For donations:Dave Bulcher, Treasurer9517 Big Bear Ave Powell, OH 43065 740-972-5618 This email address is being protected from spambots. You need JavaScript enabled to view it. Advocacy:Jordann ColemanAdvocacy Chair Concord, CA 925-349-4601 This email address is being protected from spambots. You need JavaScript enabled to view it. For inquiries in Spanish:Adriana Carbajel (MSUD parent)This email address is being protected from spambots. You need JavaScript enabled to view it. 480-278-4713 Vanessa Funes (MSUD adult) This email address is being protected from spambots. You need JavaScript enabled to view it. 508-654-2644 Please join the Spanish speaking MSUD Family Support Group by emailing the eGroup at This email address is being protected from spambots. You need JavaScript enabled to view it. For newsletter submissions:Karen Dolins, EdD, RDNewsletter Editor Scarsdale, New York 914-723-5458 This email address is being protected from spambots. You need JavaScript enabled to view it. |
Holmes Morton, M.D. Founding Pediatrician Central Pennsylvania Clinic, A Medical Home for Special Children & Adults PO Box 5806 4527 East Main Street Suite E Belleville, PA 17004 Melissa Wasserstein, MD Chief, Division of Pediatric Genetic Medicine Children’s Hospital at Montefiore Associate Professor Albert Einstein College of Medicine Bronx, NY 718-741-2318 Harvey L. Levy, MD Senior Physician in Medicine and Genetics Division of Genetics and Genomics Boston Children's Hospital Professor of Pediatrics Harvard Medical School One Autumn Street, Rm 526.1 Boston, MA 02115 617-355-6346 Fax: 617-730-4856 This email address is being protected from spambots. You need JavaScript enabled to view it. Can Ficicioglu, M.D., Ph.D. Associate Professor of Pediatrics Perelman School of Medicine at the University of Pennsylvania The Children’s Hospital of Philadelphia Division of Human Genetics/Metabolism Director, Newborn Screening Program Director, Lysosomal Storage Disorders Program 3501 Civic Center Blvd #9054 Philadelphia, PA 19104 215- 590-3376 Fax: 215-590-4297 Jessica Scott Schwoerer, M.D. Assistant Professor Dept of Pediatrics, Division of Genetics and Metabolism University of Wisconsin Hospital and Clinics/ Waisman Center 1500 Highland Ave Rm 341 Madison, WI 53705-2280 Office (608) 263-5497 |
Rani Singh, Ph.D., R.D. Emory University Div. of Medical Genetics 2040 Ridgewood Dr. Atlanta, GA 30322 404-778-8519 Fax: 404-778-8562 Sandy vanCalcar, PhD, RD Child Development & Rehabilitation Center Oregon Health and Science University 3181 SW Sam Jackson Rd Portland, OR 97239 503-494-5500 This email address is being protected from spambots. You need JavaScript enabled to view it. MSUD Family Support Group BoardPresident: Sandy Bulcher, OH Vice President: Ed Fischler, FL Treasurer: Dave Bulcher, OH Secretary: Karen R. Dolins, NY Other board members: Ivan Martin, OH Herb Foster, MA Jordann Coleman, CA |
