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MSUD Formula & Food

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Leaders in Therapeutic Medical Nutrition.
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Vitaflo® has been at the forefront of developing innovative specialized clinical nutrition products for Inborn Errors of Metabolism.
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Coram is a national provider of home infusion services and specialty pharmacy distribution with more than 80 branch locations across the country.
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We provide medical nutrition and formula for the management of metabolic conditions.
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MSUD Diet Powder.
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Makers of Ketonex-1 and Ketonex-2 medical formulas.
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Our products are very specialized in that they are not mass produced.
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Low protein microwavable rice and more.
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Lil‘s is a family owned business that treats everyone like family.
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Mevalia Low Protein is a new range of tasty foods created by Dr. Schär, designed for those with inherited metabolic disorders including phenylketonuria (PKU), chronic kidney disease, maple syrup urine disease (MSUD), tyrosinaemia, homocystinuria and urea cycle disorders
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Advocacy

As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

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My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

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NBS-MSUD Connect: Advancing MSUD Research And More

NBSCONNECT.ORG

Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

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MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

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Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

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In The Professional Journals

A Patient with MSUD: Acute Management with Sodium Phenylacetate/Sodium Benzoate and Sodium Phenylbutyrate

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Transform

A Child's Life

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