On this web site are articles selected from the following issues of the MSUD Newsletter. To read the articles in each issue, click on the issue below. To select an specific article by subject, see following Index of Articles.

 


Index to MSUD Newsletters:


Click HERE for the Current Newsletter

Index of Articles by Subject:

 

Genetics


      Update on the MSUD Gene Therapy Project, Winter 2006  

      Gene Therapy For MSUD Takes a Big Step, Spring/Summer 2003  

       Gene Therapy, Spring/Summer 2001  

       Genetic and Biochemical Approaches to MSUD, Fall/Winter 2000-2001

      Can Gene Therapy Cure This Child?, Spring/Summer 2000

      Gene Repair Therapy Update, Fall/Winter 1999-2000

      Genetics Primer, Fall/Winter 1999-2000

      Update on Gene Repair Therapy (original article from Fall/Winter 98-99), Spring/Summer 1999

      Gene Repair Therapy for MSUD, Fall/Winter 1998-99

      Research and Carrier Testing for MSUD, Fall/Winter 1997-98

      MSUD: From Protein to Genes to Therapy, Thanks to the Families, Fall/Winter 1996-97

      Genetic Cause of Classic MSUD in the Mennonite Population Discovered, April 1991

 

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Research

      Curing MSUD: Update on the Mouse Project, Summer/Fall 2006 (pages 1 & 4 in index)  
      MSUD Research Update, Winter 2006  
      Meeting at the National Institutes of Health, Winter/Spring 2003-2004  

      Current Status of the MSUD Mouse Project, Winter/Spring 2003-2004  

      Congressional Attention Drawn to MSUD, Winter/Spring 2003-2004  

      Gene Therapy For MSUD Takes a Big Step, Spring/Summer 2003  

      New Insights Into the Causes of Brain Damage in MSUD, Fall/Winter 2001-2002  

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Medical Treatment

 

     Medical Therapy for Maple Syrup Urine Disease, Winter 2006

      Treatment of the Acute Crisis in MSUD, Winter/Spring 2003-2004

      MSUD IV Solution Available From Germany, Spring/Summer 2003

      Carnitine Therapy for Maple Syrup Urine Disease, Winter 2002-2003

      Interaction Between Valproate and Branced-chain amino acid Metabolism, Spring/Summer 2002

      Summary of Paper on Diagnosis and Treatment of Maple Syrup Urine Disease, Spring/Summer 2002
     
Abstract of Article "Diagnosis and Treatment of Maple Syrup Disease", Spring/Summer 2002
     
Progress and Understanding Treatment of MSUD, Fall/Winter 2000-2001

      Sick Days and Help Letters, Fall/Winter 1999-2000

      A New Liver For Kathryn, Spring/Summer 1998

      MSUD and Pregnancy (Sue Ann's Pregnancy), Fall/Winter 1997-98

      Neurologic and dietary Management of MSUD, Fall/Winter 1996-97

      Cerebral Edema & Maple Syrup Urine Disease, Winter 1995-96

      What Is TPN & Testimonials about the use of TPN, May 1994

      MSUD News from the Clinic for Special Children (Successfully removing brain tumor from child with MSUD), Dec. 1992

      Letter From Dr. Morton (Use of DNPH), April 1991

      Responses to the New Clinic and the Use of DNPH, April 1991

 

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Dietary Treatment

      Nutritional Management of MSUD, Summer/Fall 2006 (pages 7, 8, & 9 in index)  
      Be Aware of These Potential Problems Reactions (Food Poisoning, Aspirin, Valproic Acid), Spring/Summer 2002  
      Description & Treatment of Maple Syrup Urine Disease, Spring/Summer 2001

      The Lowdown on LeucineGrams, Milligrams, and Exchanges, Spring/Summer 2000

      Engineered Protein, Spring/Summer 1999

      The Diet and School, Spring/Summer 1998

      Drinking the Formula Once, Twice or Three Times a Day: Does it Make a Difference?, Spring/Summer 1998

      Improving PKU [MSUD] Diet Compliance, Spring/Summer 1998

      Nutrition Problems of Children Undergoing Therapy for MSUD, Spring/Summer 1997

      Questions Answered About Low Protein Foods, Winter 1995-96

      Formula Companies Respond, Spring 1995

      Protein Malnutrition, April 1993

 

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Liver Transplants

 

      Liver Transplantation in MSUD: Protocol and Clinical Experience Including Domino Transplantation, Summer/Fall 2006 (pages 1 & 4 in index)  
      MSUD Transplantation Symposium 2006

 

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Newborn Screening & Medical Food Coverage

      Newborn Screening—Your Help Needed, Fall/Winter 2001-2002

      International Newborn Screening Meeting, Fall/Winter 2001-2002

      Crocheted Baby Booties and Newborn Screening, Spring/Summer 2001
     
Newborn Screening and Litigation, Fall/Winter 2000-2001

      Newborn Screening Note From Joyce, Spring/Summer 2000

      Advocating Newborn Screening, Spring/Summer 2000

      the Battle For Formula Legislation, Spring/Summer 2000

      Newborn Screening Coalition, Spring/Summer 1999

      Neo Gen Screening, Spring/Summer 1999

      Newborn Screening In New England, Spring/Summer 1999

      Late DiagnosisWhy?, Spring/Summer 1999

 

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History of MSUD and the MSUD Family Support Group

 

      History of MSUD, Fall/Winter 1996-97

      History of Our Support (continued from Winter 1995-96), Spring/Summer 1996

      The History of Our Support Group, Winter 1995-96

      A Brief History of Maple Syrup Urine Disease, Dec. 1993

 

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Family Issues & Diet Management

 

     Effects of MSUD on Learning Behavior, Summer/Fall 2006 (pages 5 & 6 in index)

     The Challenge of Preparing the Individual Education Program, Spring/Summer 2003

      Meade Johnson Calendars, Fall/Winter 2002-2003

      Hail to the Victors, Fall/Winter 2002-2003

      Be Aware of Potential Problems, Spring/Summer 2002

      Medical/Nutritional Care Plan , Fall/Winter 2001-2002

      The Prevalence of ADHD in Metabolic Disorders, Spring/Summer 2001
     
Parenting Leadership: The move from Compliance Toward Shared Management, Fall/Winter 2000-2001

      Sibling: Is this Behavior Normal?, Spring/Summer 1997

      Sibling Issues, Spring/Summer 1997

      Self-Esteem, Spring/Summer 1997

      Helpful Hints, Fall/Winter 1996-97

      ADHD in Special Needs Children, Fall/Winter 1996-97

      Teaching Diet to Your Child: A Developmental Approach, Spring 1995

      MSUD and Our Friends, Dec. 1993

      MSUD: The Impact of the Disorder on the Child and the Family, April 1991

 

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MSUD Symposium & Other Conference Reviews


      MSUD Symposium 2006, Winter 2006 (pages 2 & 3 of index)

      A Letter of Appreciation, Summer/Fall 2006

      Symposium 2006 Attendees said . . .

      MSUD Symposiums in Brazil, Spring/Summer 2003

      Symposium 2002 Review, Fall/Winter 2002-2003

      National Coalition for PKU and Allied Disorders Metabolic Confrence, Spring/Summer 2001
     
Symposium 2000 Reviewed, Fall/Winter 2000-2001
      Symposium 2000 Presentations, Fall/Winter 2000-2001

      Gleanings From the New England Connection Conference Editor's Notes, Spring/Summer 1999

      Symposium 1998 Review, Fall/Winter 1998-99

      Report on Metabolic Conference, Spring/Summer 1998

      Symposium 1996 Review (Continued from Fall/Winter 1996-97) Spring/Summer 1997

      Symposium 1996 Review, Fall/Winter 1996-97

      1994 Symposium Review, Dec. 1994

      Summary of Symposium 1992 Toronto, Dec. 1992

      Field Trial at Symposium, Dec. 1992

      Comments from a Parent, Dec. 1992

      Post Conference Follow-Up, Dec. 1992


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Featured Families


      Elsis Santos' Quinceanera, Summer/Fall 2006

      Connor Patrick McMahon, Summer/Fall 2006

      Jimena Gatica, Summer/Fall 2006

      Miracle Child, Spring/Summer 2003

      Dalma's New Home, Spring/Summer 2003

      From the Heart of the Other Mother, Spring/Summer 2003

      The Villela Story , Spring/Summer 2002
      A Mother's Story , Spring/Summer 2002
     
Joshua Hildyard, Australia, Fall/Winter 2001-2002  

      Noah Weber, Ontario, Canada, Fall/Winter 2001-2002  

      Laura From Brazil, Spring/Summer 2001  

      Our Gift from Heaven, Fall/Winter 2000-2001

      Maria Fernanda and Her Family, Fall/Winter 2000-2001

      Nick At 21, Spring/Summer 2000

      The Story of Noa, Spring/Summer 2000

      Kyra van Schaik, a Little Dutch Girl, Spring/Summer 2000

      A Good First Year (Sydney Kelly), Fall/Winter 1998-99

      My Experience Breast Feeding Our MSUD Baby, Fall/Winter 1998-99

      Our Baby's Struggle to Live (Ammon Shirk), Spring/Summer 1998

      MSUD: Fact or Fiction (Anna Ruther), Spring/Summer 1998

      Samantha's Symposium 1996 speech, Fall/Winter 1997-98

      Lydia WeberHer Letter, Fall/Winter 1997-98

      Lydia Weber Editor's Notes, Fall/Winter 1997-98

      Emily's Story - An Adult with MSUD, Fall/Winter 1997-98

      Krista Olstad, Fall/Winter 1997-98

      Zachary Pinskey, Spring/Summer 1997

      Verna Martin, Fall/Winter 1996-97

      Brittany Fuller, Spring/Summer 1996

      The Third One Was Rhoda, Fall/Winter 1995-96

      MSUD a Parent's Experience, Spring 1995

      Brock's Story, May 1994

      Something Wrong With Glenn, Dec. 1994

      Letter From Andria Merrill, Dec. 1994

      Julia Saunders, April 1993

      An Angel From Heaven (Lois Newswanger), April 1993

      Jason Kendall, April 1993

      Nick's Story, Dec. 1993

      Amos and the Brain Tumor, May 1992

      Chad & His Last Hospitalization, May 1992

      Jordan Groff, Dec. 1992

      Omar from Saudi Arabia, May 1992

      Cory Eck, April 1991

      Our Special Story About Leanna, April 1991

 

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Low Protein Recipes & Food and Formula Information

 

      Taco Dip, Tortilla Chips, Chex Mix, Apple Dumplings, Chicken Fajita, Summer/Fall 2006

      Chocolate Revel Bars, Winter/Spring 2003-2004

      Rice Salad, Winter/Spring 2003-2004

      Potato Salad, Winter/Spring 2003-2004

      Cambrooke Foods MocNuggets, Winter/Spring 2003-2004

      Cambrooke's School Lunch Program, Spring/Summer 2003

      Source of Nutritional Data, Spring/Summer 2003

      Baked Rice, Mushroom Burgers, Spinach Dip, Hush Puppies, Spring/Summer 2003

      Heating Metabolic Formulas, Fall/Winter 2002-2003

      MSUD Food List Booklet, Fall/Winter 2002-2003

      Cambrook's Rewards Club, Fall/Winter 2002-2003

      Herb Pretzels, Apple Tapioca, Pizza Crust, Cheese Sauce, Cheese Potatoes, Creamy Sorbet, Fall/Winter 2002-2003

      DonutsLo-Pro Recipe, DonutsFamily Recipe, Baked BeansLoPro Recipe, Rice PilafLo-Pro Recipe, Spring/Summer 2002.

      Bread SticksLo-Pro Recipe, Bread SticksFamily Recipe, Taco SoupLoPro Recipe, Taco SoupFamily Recipe,
Pizza CasseroleLo-Pro Recipe, Pizza CasseroleFamily Recipe, Simple Hash Brown, Fall/Winter 2001-2002

      Bread Stuffing, Potato Stuffing, Pumkin Apple Streusel Muffins, Apple Goodie, Peppermint Crunch Cookies, Easy Punch, Pie Crust, Apple Pie, Pumpkin Pie, Fruit Cupcakes , Fall/Winter 2000-2001

      Grilled Mushrooms, Campfire Potatoes, Ice Cream Cones, Pita Bread, Veggie Salad- For Pita Bread, Watermelon Ice, Fresh Vegetable Salad, Old-fashioned Lemonade, Cumber Salad, Red Velvet Cake & Frosting For Red Velvet Cake, Spring/Summer 2000

      New foods, Spring/Summer 2000

      Bread, Dinner Rolls, Soft Pretzels, Pizza, Low Protein Ice Cream, Apple Salad, Fudgy Buttons, Chocolate Spiders, Fall/Winter 1999/2000

      Sandwich Cheese Slices, Fall/Winter 1999/2000

      Formula Suggestion, Spring/Summer 1999

      Lo Pro Pancakes, Mozzarella Cheese Sticks, Breaded Mushrooms, Breaded Cauliflower, Fruit Slush, Ginger Glazed Carrots, Strawberry Sorbet, Lemon Bars, & Strawberry Tapioca, Spring/Summer 1999

      Ice Cream Solution, Fall/Winter 1998-99

      New Uncle Henry's Low Protein Pretzels, Fall/Winter 1998-99

      Hints From Mothers, Fall/Winter 1998-99

      International Food Bank, Fall/Winter 1998-99

      Herb Pretzels, Chex School Fuel, Crispy Chips, Tangy Dip, Chocolate Waffle Cookies, Cheese Ball, Fall/Winter 1998-99

      Checking Out New Foods, Spring/Summer 1998

      Low Pro Pretzels, Chocolate Mint Brownies, Jordan's Chili, & Master Mix Pancakes, Spring/Summer 1998

      Scalloped Potato Casserole, Waffles, Low Protein Classic Chocolate Chip Cookies, Cherry Crumb Cake, Orange Sherbet & Lasagna, Fall/Winter 1997-98

      Food News, Fall/WinterCheeses and Loprofin Foods, 1997-98

      Onion Rice Casserole, Vegetable Croquettes, Molasses Cookies, Dream Dessert, Fresh Fruit Pops & Saucy Donuts, Spring/Summer 1997

      Handy Hints and Products, New MSUD Formula, Spring/Summer 1997

      Peppermint Patties, Carmel Krispy Bars, Marshmallows Puffs, Christmas Hard Candy,Ê Fall/Winter 1996-97

      A Low Protein Milk Substitute, Note on Medical Foods, Fall/Winter 1996-97

      Low Protein Cheesecakes, Cathedral Window Cookies, White Bread, Low Protein Noodles, Substitutes for Milk & Ice Cream, Spring/Summer 1996

      Food For ThoughtHelping your child on a special diet eat right, Spring/Summer 1996

      BBQ Green Beans, Whoopie Pies, Tips From Mothers, Tips On Mixing Formula, Winter 1995-96

      Low Protein Macaroni & Cheese, Oat Burgers, mountain Pies & Camper's Casserole, Spring 1995

      Tips For Travel & Camping, Spring 1995

      Low Pro Fruit Pizza, Easy Apple Salad, Orange Julius, Cool Summer Dessert or Salad, May 1994

      Chili Rigantini, Cheese Sauce, Steve's Peanut Butter & Peanut Butter Cups, Dec. 1994

      New Formula From Ross Laboratories, April 1993

      Pineapple Creme Dressing, Honey Lime Dressing, Creamy Guacamole, Trish's Best White Bread & More On Bread Makers, April 1993

      Low Protein Pretzels, Easy Macaroni & Cheese, Dec. 1993

      Vegetable Perogies & Cornstarch Pudding, May 1992

      Spicy Candied Yams, Basic Pie Crust & Pumpkin Pie, Dec. 1992

 

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Sharing Section and MSUD Family Information

 

      Improving Self-Esteem, Summer/Fall 2006

      Essay by David Fischler, Summer/Fall 2006

      Nikolai Rudd letter, Summer/Fall 2006

      Poems by Nikolai Rudd, Summer/Fall 2006

      Importance of Medical Identification, Winter/Spring 2003-2004

      Thousands of Miles Apart, Winter/Spring 2003-2004

      My First Big Trip, Fall/Winter 2002-2003

      Tips for Preparing and Traveling in a foreign Country, Fall/Winter 2002-2003

      Have MSUD—Will Travel, Fall/Winter 2002-2003

      Nearly There, Fall/Winter 2002-2003

      Formula Battles, Fall/Winter 2002-2003

      To G or not to G, That is the Question?, Fall/Winter 2002-2003

      Interaction Between Valproate and Branced-chain amino acid Metabolism, Spring/Summer 2002
     
Misdiagnosed with MSUD, Spring/Summer 2002
     
With No Prior Experience, Spring/Summer 2002
     
Comments from eGroup Members, Spring/Summer 2002
     
Our Experience with Valproic AcidLisa A. Obrien (Machak), Spring/Summer 2002
     
Melissa & Jessica, Fall/Winter 2001-2002

      When the student becomes the teacher, Fall/Winter 2001-2002

      Flu Shots, Fall/Winter 2001-2002

      Sanse's Gallbladder Surgery, Spring/Summer 2001
     
Britney's Journey to Paradise, Spring/Summer 2001
     
Meeting NeedsLou Ann's Letter & The Family From Iran, Spring/Summer 2001

      Join the Exclusive MSUD eGroup, Fall/Winter 2000-2001

      Tax Deductions for Conferences, Fall/Winter 2000-2001

      McDonald's Salads, Fall/Winter 2000-2001

      MSUD Nick's Story, Spring/Summer 2000

      Jordan's Surgery, Spring/Summer 2000

      All Is Not Well In Brazil & In Other Countries, Spring/Summer 2000

      Congratulations to the Newly Married, Spring/Summer 2000

      Life With MSUD (Kylie Williams), Fall/Winter 1999/2000

      Grandson With MSUD, Fall/Winter 1999/2000

      A Grandparent's Perspective, Fall/Winter 1999/2000

      On Diet For Almost Thirty Years, Fall/Winter 1999/2000

      Our Experience With Ritalin, Fall/Winter 1999/2000

      MSUD Picnic in Pennsylvania, Fall/Winter 1999/2000

      A Brother's Tribute, Spring/Summer 1999

      A Special Day For Chelsea and Noah, Spring/Summer 1999

      The Ruter Family's Big Apple Adventure, Spring/Summer 1999

      Families Meet in Ohio, Spring/Summer 1999

      Late Diagnosis, Spring/Summer 1999

      School Honor (Melissa Berman), Spring/Summer 1999

      Our Trip With A Special Wish, Fall/Winter 1997-98

      A Wish Granted, Fall/Winter 1997-98

      Keith Martin Graduates, Fall/Winter 1997-98

      Sue Ann has Been Sharing Editor's Note, Sue Ann McKnightMy Story, Fall/Winter 1997-98

      In Sympathy (death of Leroy Martin), Spring/Summer 1997

      From Sickness to Health (Kathryn's liver failure & transplant), Spring/Summer 1997

      Sue Ann Has a Second Child, Spring/Summer 1997

      A College Graduate (Nikolai Rudd), Spring/Summer 1997

      International Aspects of MSUDChile, Spring/Summer 1997

      International Aspects of MSUDAustralia, Spring/Summer 1997

      Congratulations Tiffany, Fall/Winter 1996-97

      Letter From Jennifer Saunders, Fall/Winter 1996-97

      Question & Answer Session (Symposium 1996), Fall/Winter 1996-97

      Walgreen carries MSUD Formula, Spring/Summer 1996

      Skills For Independence, Spring/Summer 1996

      The Gauvin Family, Spring/Summer 1996

      ANMD Parent Conference Review, Winter 1995-96

      MSUD Workshop, Spring 1995

      Symposium Experience, Spring 1995

      Attention Deficit Disorder or MSUD, Spring 1995

      Jordan's Chicken Pox Experience, Spring 1995

      Shayla and Her MRI, April 1993

      Diana at the Symposium, Dec. 1994

      Letter From Nicky Guthrie, Dec. 1994

      Tony Is Greatly Missed, May 1994

      A Letter From Scotland, May 1994

      Editorial: Chlorinated pool incident, Dec. 1994

      A Positive Learning Experience, Dec. 1994

      Sad News: Death of Scott Foster and the Scott C. Foster Memorial Fund, Dec. 1994

      The Big Picnic, Dec. 1993

      He's Our Miracle: Jordan Groff's hospitalization, Dec. 1993

      Editorial: Shayla getting license and contrast in a early and an late diagnosis, April 1993

 

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Feature ArticlesProfessionals

 

      Addition to Clinic, Fall/Winter 2000-2001

      Robert Guthrie: The PKU Story, Spring/Summer 1999

      Dr. Robert Guthrie Honored, May 1995

      A Modern Dr. Schweitzer (Dr. Morton's acceptance speech), May 1994

      The Clinic For Special Children, Dec. 1993

      Dr. Morton Recognized With the Albert Schweitzer Award, Dec. 1993

      Dr. Morton's Calling: Beginning the Clinic For Special Children, April 1991

 

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Miscellaneous


      Personally from the Brubachers, Winter/Spring 2003-2004  

      MSUD in Saudi Arabia, Spring/Summer 2001

      Follow-up on Fenugreek Tea and the Smell of Maple Syrup, Fall/Winter 2000-2001

      The Special Kid's Network (For Pennsylvania Families Only), Spring/Summer 1998

      National Patient Air Transport Helpline, Spring/Summer 1998

      MSUD and Traveling, April 1993

 

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