On this web site are articles selected from the following issues of the MSUD Newsletter. To read the articles in each issue, click on the issue below. To select an specific article by subject, see following Index of Articles.
Genetics
Ç
Update
on the MSUD Gene Therapy Project, Winter 2006
Ç
Gene
Therapy For MSUD Takes a Big Step, Spring/Summer 2003
Ç Gene Therapy, Spring/Summer 2001
Ç Genetic and Biochemical Approaches to MSUD, Fall/Winter 2000-2001
Ç ãCan Gene Therapy Cure This Child?ä, Spring/Summer 2000
Ç Gene Repair Therapy Update, Fall/Winter 1999-2000
Ç Genetics Primer, Fall/Winter 1999-2000
Ç Update on Gene Repair Therapy (original article from Fall/Winter 98-99), Spring/Summer 1999
Ç Gene Repair Therapy for MSUD, Fall/Winter 1998-99
Ç
Research and Carrier Testing for MSUD, Fall/Winter 1997-98
Ç MSUD: From Protein to Genes to Therapy, Thanks to the Families, Fall/Winter 1996-97
Ç Genetic Cause of Classic MSUD in the Mennonite Population Discovered, April 1991
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Research
Ç
MSUD Research Update,
Winter 2006
Ç
Meeting at the National Institutes of Health,
, Winter/Spring
2003-2004
Ç
Current Status of the MSUD Mouse Project, , Winter/Spring 2003-2004
Ç
Congressional Attention Drawn to MSUD, , Winter/Spring 2003-2004
Ç
Gene Therapy For MSUD Takes a Big Step, Spring/Summer 2003
Ç
New Insights Into the Causes of Brain Damage in MSUD, Fall/Winter 2001-2002
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Medical Treatment
Ç Medical
Therapy for Maple Syrup Urinary Disease,
Winter 2006
Ç
Treatment
of the Acute Crisis in MSUD,
Winter/Spring 2003-2004
Ç MSUD IV Solution Available From Germany, Spring/Summer 2003
Ç Carnitine Therapy for Maple Syrup Urine Disease, Winter 2002-2003
Ç Interaction Between Valproate and Branced-chain amino acid Metabolism, Spring/Summer 2002
Ç Summary of Paper on Diagnosis and Treatment of Maple Syrup Urine Disease, Spring/Summer 2002
Ç Abstract of Article "Diagnosis and Treatment of Maple Syrup Disease", Spring/Summer 2002
Ç Progress and Understanding Treatment of MSUD, Fall/Winter 2000-2001
Ç Sick Days and Help Letters, Fall/Winter 1999-2000
Ç A New Liver For Kathryn, Spring/Summer 1998
Ç MSUD and Pregnancy (Sue Annâs Pregnancy), Fall/Winter 1997-98
Ç Neurologic and dietary Management of MSUD, Fall/Winter 1996-97
Ç Cerebral Edema & Maple Syrup Urine Disease, Winter 1995-96
Ç What Is TPN & Testimonials about the use of TPN, May 1994
Ç MSUD News from the Clinic for Special Children (Successfully removing brain tumor from child with MSUD), Dec. 1992
Ç Letter From Dr. Morton (Use of DNPH), April 1991
Ç Responses to the New Clinic and the Use of DNPH, April 1991
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Dietary Treatment
Ç Be Aware of These Potential Problems ÷Reactions (Food Poisoning, Aspirin, Valproic Acid), Spring/Summer 2002
Ç Description & Treatment of Maple Syrup Urine Disease, Spring/Summer 2001
Ç The Lowdown on Leucine÷Grams, Milligrams, and Exchanges, Spring/Summer 2000
Ç Engineered Protein, Spring/Summer 1999
Ç The Diet and School, Spring/Summer 1998
Ç Drinking the Formula Once, Twice or Three Times a Day: Does it Make a Difference?, Spring/Summer 1998
Ç Improving PKU [MSUD] Diet Compliance, Spring/Summer 1998
Ç Nutrition Problems of Children Undergoing Therapy for MSUD, Spring/Summer 1997
Ç Questions Answered About Low Protein Foods, Winter 1995-96
Ç Formula Companies Respond, Spring 1995
Ç Protein Malnutrition, April 1993
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Newborn Screening & Medical Food Coverage
Ç Newborn Screening—Your Help Needed, Fall/Winter 2001-2002
Ç International Newborn Screening Meeting, Fall/Winter 2001-2002
Ç Crocheted Baby Booties and Newborn Screening, Spring/Summer 2001
Ç Newborn Screening and Litigation, Fall/Winter 2000-2001
Ç Newborn Screening Note From Joyce, Spring/Summer 2000
Ç Advocating Newborn Screening, Spring/Summer 2000
Ç the Battle For Formula Legislation, Spring/Summer 2000
Ç Newborn Screening Coalition, Spring/Summer 1999
Ç Neo Gen Screening, Spring/Summer 1999
Ç Newborn Screening In New England, Spring/Summer 1999
Ç Late Diagnosis÷Why?, Spring/Summer 1999
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History of MSUD and the MSUD Family Support Group
Ç History of MSUD, 1996-97
Ç History of Our Support (continued from Winter 1995-96), Spring/Summer 1996
Ç The History of Our Support Group, Winter 1995-96
Ç A Brief History of Maple Syrup Urine Disease, Dec. 1993
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Family Issues & Diet Management
Ç The Challenge of Preparing the Individual Education Program, Spring/Summer 2003
Ç Meade Johnson Calendars, Fall/Winter 2002-2003
Ç Hail to the Victors, Fall/Winter 2002-2003
Ç Be Aware of Potential Problems, Spring/Summer 2002
Ç Medical/Nutritional Care Plan , Fall/Winter 2001-2002
Ç The Prevalence of ADHD in Metabolic Disorders, Spring/Summer 2001
Ç Parenting Leadership: The move from Compliance Toward Shared Management, Fall/Winter 2000-2001
Ç Sibling: Is this Behavior Normal?, Spring/Summer 1997
Ç Sibling Issues, Spring/Summer 1997
Ç Self-Esteem, Spring/Summer 1997
Ç Helpful Hints, Fall/Winter 1996-97
Ç ADHD in Special Needs Children, Fall/Winter 1996-97
Ç Teaching Diet to Your Child: A Developmental Approach, Spring 1995
Ç MSUD and Our Friends, Dec. 1993
Ç MSUD: The Impact of the Disorder on the Child and the Family, April 1991
TOP
MSUD Symposium & Other Conference Reviews
Ç
MSUD
Symposium 2006,
Winter 2006
Ç
MSUD
Symposiums in Brazil, Spring/Summer 2003
Ç Symposium 2002 Review, Fall/Winter 2002-2003
Ç National Coalition for PKU and Allied Disorders Metabolic Confrence, Spring/Summer 2001
Ç Symposium 2000 Reviewed, Fall/Winter 2000-2001
Ç Symposium 2000 Presentations, Fall/Winter 2000-2001
Ç Gleanings From the New England Connection Conference÷Editorâs Notes, Spring/Summer 1999
Ç Symposium â98 Review, Fall/Winter 1998-99
Ç Report on Metabolic Conference, Spring/Summer 1998
Ç Symposium â96 Review (Continued from Fall/Winter 1996-97) Spring/Summer 1997
Ç Symposium â96 Review, Fall/Winter 1996-97
Ç 1994 Symposium Review, Dec. 1994
Ç Summary of Symposium 1992÷Toronto, Dec. 1992
Ç Field Trial at Symposium, Dec. 1992
Ç Comments from a Parent, Dec. 1992
Ç Post Conference Follow-Up, Dec. 1992
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Featured Families
Ç Trial of Family from India, Winter/Spring 2003-2004
Ç Miracle Child, Spring/Summer 2003
Ç Dalma's New Home, Spring/Summer 2003
Ç From the Heart of the Other Mother, Spring/Summer 2003
Ç The Villela Story , Spring/Summer 2002
Ç A Mother's Story , Spring/Summer 2002
Ç Joshua Hildyard÷Australia, Fall/Winter 2001-2002
Ç Noah Weber÷Ontario, Canada, Fall/Winter 2001-2002
Ç Laura From Brazil, Spring/Summer 2001
Ç Our Gift from Heaven, Fall/Winter 2000-2001
Ç Maria Fernanda and Her Family, Fall/Winter 2000-2001
Ç Nick At 21, Spring/Summer 2000
Ç The Story of Noa, Spring/Summer 2000
Ç Kyra van Schaik, a Little Dutch Girl, Spring/Summer 2000
Ç A Good First Year (Sydney Kelly), Fall/Winter 1998-99
Ç My Experience Breast Feeding Our MSUD Baby, Fall/Winter 1998-99
Ç Our Babyâs Struggle to Live (Ammon Shirk), Spring/Summer 1998
Ç MSUD: Fact or Fiction (Anna Ruther), Spring/Summer 1998
Ç Samanthaâs Symposium â96 speech, Fall/Winter 1997-98
Ç Lydia Weber÷Her Letter, Fall/Winter 1997-98
Ç Lydia Weber÷Editorâs Notes, Fall/Winter 1997-98
Ç Emilyâs Story÷An Adult with MSUD, Fall/Winter 1997-98
Ç Krista Olstad, Fall/Winter 1997-98
Ç Zachary Pinskey, Spring/Summer 1997
Ç Verna Martin, Fall/Winter 1996-97
Ç Brittany Fuller, Spring/Summer 1996
Ç The Third One Was Rhoda, Fall/Winter 1995-96
Ç MSUD÷A Parentâs Experience, Spring 1995
Ç Brockâs Story, My 1994
Ç Something Wrong With Glenn, Dec. 1994
Ç Letter From Andria Merrill, Dec. 1994
Ç Julia Saunders, April 1993
Ç An Angel From Heaven (Lois Newswanger), April 1993
Ç Jason Kendall, April 1993
Ç Nickâs Story, Dec. 1993
Ç Amos and the Brain Tumor, May 1992
Ç Chad & His Last Hospitalization, May 1992
Ç Jordan Groff, Dec. 1992
Ç Omar from Saudi Arabia, May 1992
Ç Cory Eck, April 1991
Ç Our Special Story About Leanna, April 1991
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Low Protein Recipes & Food and Formula Information
Ç Chocolate Revel Bars, Winter/Spring 2003-2004
Ç Rice Salad, Winter/Spring 2003-2004
Ç Potato Salad, Winter/Spring 2003-2004
Ç Cambrooke Foods MocNuggets, Winter/Spring 2003-2004
Ç Cambrooke's School Lunch Program, Spring/Summer 2003
Ç Source of Nutritional Data, Spring/Summer 2003
Ç Baked Rice, Mushroom Burgers, Spinach Dip, Hush Puppies, Spring/Summer 2003
Ç Heating Metabolic Formulas, Fall/Winter 2002-2003
Ç MSUD Food List Booklet, Fall/Winter 2002-2003
Ç Cambrook's Rewards Club, Fall/Winter 2002-2003
Ç Herb Pretzels, Apple Tapioca, Pizza Crust, Cheese Sauce, Cheese Potatoes, Creamy Sorbet, Fall/Winter 2002-2003
Ç Donuts÷Lo-Pro Recipe, Donuts÷Family Recipe, Baked Beans÷LoPro Recipe, Rice Pilaf÷Lo-Pro Recipe, Spring/Summer 2002.
Ç Bread Sticks÷Lo-Pro Recipe, Bread Sticks÷Family Recipe, Taco Soup÷LoPro Recipe, Taco Soup÷Family Recipe,
Pizza Casserole÷Lo-Pro Recipe, Pizza Casserole÷Family Recipe, Simple Hash Brown, Fall/Winter 2001-2002
Ç Bread Stuffing, Potato Stuffing, Pumkin Apple Streusel Muffins, Apple Goodie, Peppermint Crunch Cookies, Easy Punch, Pie Crust, Apple Pie, Pumpkin Pie, Fruit Cupcakes , Fall/Winter 2000-2001
Ç Grilled Mushrooms, Campfire Potatoes, Ice Cream Cones, Pita Bread, Veggie Salad- For Pita Bread, Watermelon Ice, Fresh Vegetable Salad, Old-fashioned Lemonade, Cumber Salad, Red Velvet Cake & Frosting For Red Velvet Cake, Spring/Summer 2000
Ç New foods, Spring/Summer 2000
Ç Bread, Dinner Rolls, Soft Pretzels, Pizza, Low Protein Ice Cream, Apple Salad, Fudgy Buttons, Chocolate Spiders, Fall/Winter 1999/2000
Ç Sandwich Cheese Slices, Fall/Winter 1999/2000
Ç Formula Suggestion, Spring/Summer 1999
Ç Lo Pro Pancakes, Mozzarella Cheese Sticks, Breaded Mushrooms, Breaded Cauliflower, Fruit Slush, Ginger Glazed Carrots, Strawberry Sorbet, Lemon Bars, & Strawberry Tapioca, Spring/Summer 1999
Ç Ice Cream Solution, Fall/Winter 1998-99
Ç New÷Uncle Henryâs Low Protein Pretzels, Fall/Winter 1998-99
Ç Hints From Mothers, Fall/Winter 1998-99
Ç International Food Bank, Fall/Winter 1998-99
Ç Herb Pretzels, Chex School Fuel, Crispy Chips, Tangy Dip, Chocolate Waffle Cookies, Cheese Ball, Fall/Winter 1998-99
Ç Checking Out New Foods, Spring/Summer 1998
Ç Low Pro Pretzels, Chocolate Mint Brownies, Jordanâs Chili, & Master Mix Pancakes, Spring/Summer 1998
Ç Scalloped Potato Casserole, Waffles, Low Protein Classic Chocolate Chip Cookies, Cherry Crumb Cake, Orange Sherbet & Lasagna, Fall/Winter 1997-98
Ç Food News, Fall/Winter÷Cheeses and Loprofin Foods, 1997-98
Ç Onion Rice Casserole, Vegetable Croquettes, Molasses Cookies, Dream Dessert, Fresh Fruit Pops & Saucy Donuts, Spring/Summer 1997
Ç Handy Hints and Products, New MSUD Formula, Spring/Summer 1997
Ç Peppermint Patties, Carmel Krispy Bars, Marshmallows Puffs, Christmas Hard Candy,Ê Fall/Winter 1996-97
Ç A Low Protein Milk Substitute, Note on Medical Foods, Fall/Winter 1996-97
Ç Low Protein Cheesecakes, Cathedral Window Cookies, White Bread, Low Protein Noodles, Substitutes for Milk & Ice Cream, Spring/Summer 1996
Ç Food For Thought÷Helping your child on a special diet eat right, Spring/Summer 1996
Ç BBQ Green Beans, Whoopie Pies, Tips From Mothers, Tips On Mixing Formula, Winter 1995-96
Ç Low Protein Macaroni & Cheese, Oat Burgers, mountain Pies & Camperâs Casserole, Spring 1995
Ç Tips For Travel & Camping, Spring 1995
Ç Low Pro Fruit Pizza, Easy Apple Salad, Orange Julius, Cool Summer Dessert or Salad, May 1994
Ç Chili Rigantini, Cheese Sauce, Steveâs Peanut Butter & Peanut Butter Cups, Dec. 1994
Ç New Formula From Ross Laboratories, April 1993
Ç Pineapple Creme Dressing, Honey Lime Dressing, Creamy Guacamole, Trishâs Best White Bread & More On Bread Makers, April 1993
Ç Low Protein Pretzels, Easy Macaroni & Cheese, Dec. 1993
Ç Vegetable Perogies & Cornstarch Pudding, May 1992
Ç Spicy Candied Yams, Basic Pie Crust & Pumpkin Pie, Dec. 1992
TOP
Sharing Section and MSUD Family Information
Ç Importance of Medical Identification, Winter/Spring 2003-2004
Ç Thousands of Miles Apart, Winter/Spring 2003-2004
Ç My First Big Trip, Fall/Winter 2002-2003
Ç Tips for Preparing and Traveling in a foreign Country, Fall/Winter 2002-2003
Ç Have MSUD—Will Travel, Fall/Winter 2002-2003
Ç Nearly There, Fall/Winter 2002-2003
Ç Formula Battles, Fall/Winter 2002-2003
Ç To G or not to G, That is the Question?, Fall/Winter 2002-2003
Ç Interaction Between Valproate and Branced-chain amino acid Metabolism, Spring/Summer 2002
Ç Misdiagnosed with MSUD, Spring/Summer 2002
Ç With No Prior Experience, Spring/Summer 2002
Ç Comments from eGroup Members, Spring/Summer 2002
Ç Our Experience with Valproic Acid÷Lisa A. Obrien (Machak), Spring/Summer 2002
Ç Melissa & Jessica, Fall/Winter 2001-2002
Ç When the student becomes the teacher, Fall/Winter 2001-2002
Ç Flu Shots, Fall/Winter 2001-2002
Ç Sanse's Gallbladder Surgery, Spring/Summer 2001
Ç Britney's Journey to Paradise, Spring/Summer 2001
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