On this web site are articles selected from the following issues of the MSUD Newsletter. To read the articles in each issue, click on the issue below. To select an specific article by subject, see following Index of Articles.
Genetics
Update
on the MSUD Gene Therapy Project, Winter 2006
Gene
Therapy For MSUD Takes a Big Step, Spring/Summer 2003
Gene Therapy, Spring/Summer
2001
Genetic and Biochemical Approaches to
MSUD, Fall/Winter 2000-2001
Can Gene Therapy Cure This Child?, Spring/Summer 2000
Gene Repair Therapy Update, Fall/Winter 1999-2000
Genetics Primer, Fall/Winter 1999-2000
Update on Gene Repair Therapy (original article from Fall/Winter 98-99), Spring/Summer
1999
Gene Repair Therapy for MSUD, Fall/Winter 1998-99
Research and Carrier Testing for MSUD, Fall/Winter 1997-98
MSUD: From Protein to Genes to Therapy, Thanks to the Families, Fall/Winter
1996-97
Genetic Cause of Classic MSUD in the Mennonite Population Discovered, April 1991
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Research
Curing MSUD: Update on the Mouse Project, Summer/Fall 2006 (pages 1 & 4 in index)
MSUD Research Update,
Winter 2006
Meeting at the National Institutes of Health,
Winter/Spring
2003-2004
Current Status of the MSUD Mouse Project, Winter/Spring 2003-2004
Congressional Attention Drawn to MSUD, Winter/Spring 2003-2004
Gene Therapy For MSUD Takes a Big Step, Spring/Summer 2003
New Insights Into the Causes of Brain Damage in MSUD, Fall/Winter 2001-2002
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Medical Treatment
Medical
Therapy for Maple Syrup Urine Disease,
Winter 2006
Treatment
of the Acute Crisis in MSUD,
Winter/Spring 2003-2004
MSUD IV Solution Available From Germany, Spring/Summer 2003
Carnitine Therapy for Maple Syrup Urine Disease, Winter 2002-2003
Interaction Between Valproate and Branced-chain amino acid Metabolism, Spring/Summer 2002
Summary of Paper on Diagnosis and Treatment of Maple Syrup Urine Disease, Spring/Summer 2002
Abstract of Article "Diagnosis and Treatment of Maple Syrup Disease", Spring/Summer 2002
Progress and Understanding Treatment of MSUD, Fall/Winter 2000-2001
Sick Days and Help Letters, Fall/Winter 1999-2000
A New Liver For Kathryn, Spring/Summer 1998
MSUD and Pregnancy (Sue Ann's Pregnancy), Fall/Winter 1997-98
Neurologic and dietary Management of MSUD, Fall/Winter 1996-97
Cerebral Edema & Maple Syrup Urine Disease, Winter 1995-96
What Is TPN & Testimonials about the use of TPN, May 1994
MSUD News from the Clinic for Special Children (Successfully removing brain tumor from child with MSUD), Dec. 1992
Letter From Dr. Morton (Use of DNPH), April 1991
Responses to the New Clinic and the Use of DNPH, April 1991
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Dietary Treatment
Nutritional Management of MSUD, Summer/Fall 2006 (pages 7, 8, & 9 in index)
Be Aware of These Potential Problems Reactions (Food Poisoning, Aspirin, Valproic Acid), Spring/Summer 2002
Description & Treatment of Maple Syrup Urine Disease, Spring/Summer 2001
The Lowdown on LeucineGrams, Milligrams, and Exchanges, Spring/Summer 2000
Engineered Protein, Spring/Summer 1999
The Diet and School, Spring/Summer 1998
Drinking the Formula Once, Twice or Three Times a Day: Does it Make a Difference?, Spring/Summer 1998
Improving PKU [MSUD] Diet Compliance, Spring/Summer 1998
Nutrition Problems of Children Undergoing Therapy for MSUD, Spring/Summer 1997
Questions Answered About Low Protein Foods, Winter 1995-96
Formula Companies Respond, Spring 1995
Protein Malnutrition, April 1993
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Liver Transplants
Liver Transplantation in MSUD: Protocol and Clinical Experience Including Domino Transplantation, Summer/Fall 2006 (pages 1 & 4 in index)
MSUD Transplantation Symposium 2006
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Newborn Screening & Medical Food Coverage
Newborn Screening—Your Help Needed, Fall/Winter 2001-2002
International Newborn Screening Meeting, Fall/Winter 2001-2002
Crocheted Baby Booties and Newborn Screening, Spring/Summer 2001
Newborn Screening and Litigation, Fall/Winter 2000-2001
Newborn Screening Note From Joyce, Spring/Summer 2000
Advocating Newborn Screening, Spring/Summer 2000
the Battle For Formula Legislation, Spring/Summer 2000
Newborn Screening Coalition, Spring/Summer 1999
Neo Gen Screening, Spring/Summer 1999
Newborn Screening In New England, Spring/Summer 1999
Late DiagnosisWhy?, Spring/Summer 1999
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History of MSUD and the MSUD Family Support Group
History of MSUD, Fall/Winter 1996-97
History of Our Support (continued from Winter 1995-96), Spring/Summer 1996
The History of Our Support Group, Winter 1995-96
A Brief History of Maple Syrup Urine Disease, Dec. 1993
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Family Issues & Diet Management
Effects of MSUD on Learning Behavior, Summer/Fall 2006 (pages 5 & 6 in index)
The Challenge of Preparing the Individual Education Program, Spring/Summer 2003
Meade Johnson Calendars, Fall/Winter 2002-2003
Hail to the Victors, Fall/Winter 2002-2003
Be Aware of Potential Problems, Spring/Summer 2002
Medical/Nutritional Care Plan , Fall/Winter 2001-2002
The Prevalence of ADHD in Metabolic Disorders, Spring/Summer 2001
Parenting Leadership: The move from Compliance Toward Shared Management, Fall/Winter 2000-2001
Sibling: Is this Behavior Normal?, Spring/Summer 1997
Sibling Issues, Spring/Summer 1997
Self-Esteem, Spring/Summer 1997
Helpful Hints, Fall/Winter 1996-97
ADHD in Special Needs Children, Fall/Winter 1996-97
Teaching Diet to Your Child: A Developmental Approach, Spring 1995
MSUD and Our Friends, Dec. 1993
MSUD: The Impact of the Disorder on the Child and the Family, April 1991
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MSUD Symposium & Other Conference Reviews
MSUD Symposium 2006,
Winter 2006 (pages 2 & 3 of index)
A Letter of Appreciation, Summer/Fall 2006
Symposium 2006 Attendees said . . .
MSUD
Symposiums in Brazil, Spring/Summer 2003
Symposium 2002 Review, Fall/Winter 2002-2003
National Coalition for PKU and Allied Disorders Metabolic Confrence, Spring/Summer 2001
Symposium 2000 Reviewed, Fall/Winter 2000-2001
Symposium 2000 Presentations, Fall/Winter 2000-2001
Gleanings From the New England Connection Conference Editor's Notes, Spring/Summer 1999
Symposium 1998 Review, Fall/Winter 1998-99
Report on Metabolic Conference, Spring/Summer 1998
Symposium 1996 Review (Continued from Fall/Winter 1996-97) Spring/Summer 1997
Symposium 1996 Review, Fall/Winter 1996-97
1994 Symposium Review, Dec. 1994
Summary of Symposium 1992 Toronto, Dec. 1992
Field Trial at Symposium, Dec. 1992
Comments from a Parent, Dec. 1992
Post Conference Follow-Up, Dec. 1992
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Featured Families
Elsis Santos' Quinceanera, Summer/Fall 2006
Connor Patrick McMahon, Summer/Fall 2006
Jimena Gatica, Summer/Fall 2006
Miracle Child, Spring/Summer 2003
Dalma's New Home, Spring/Summer 2003
From the Heart of the Other Mother, Spring/Summer 2003
The Villela Story , Spring/Summer 2002
A Mother's Story , Spring/Summer 2002
Joshua Hildyard, Australia, Fall/Winter 2001-2002
Noah Weber, Ontario, Canada, Fall/Winter 2001-2002
Laura From Brazil, Spring/Summer 2001
Our Gift from Heaven, Fall/Winter 2000-2001
Maria Fernanda and Her Family, Fall/Winter 2000-2001
Nick At 21, Spring/Summer 2000
The Story of Noa, Spring/Summer 2000
Kyra van Schaik, a Little Dutch Girl, Spring/Summer 2000
A Good First Year (Sydney Kelly), Fall/Winter 1998-99
My Experience Breast Feeding Our MSUD Baby, Fall/Winter 1998-99
Our Baby's Struggle to Live (Ammon Shirk), Spring/Summer 1998
MSUD: Fact or Fiction (Anna Ruther), Spring/Summer 1998
Samantha's Symposium 1996 speech, Fall/Winter 1997-98
Lydia WeberHer Letter, Fall/Winter 1997-98
Lydia Weber Editor's Notes, Fall/Winter 1997-98
Emily's Story - An Adult with MSUD, Fall/Winter 1997-98
Krista Olstad, Fall/Winter 1997-98
Zachary Pinskey, Spring/Summer 1997
Verna Martin, Fall/Winter 1996-97
Brittany Fuller, Spring/Summer 1996
The Third One Was Rhoda, Fall/Winter 1995-96
MSUD a Parent's Experience, Spring 1995
Brock's Story, May 1994
Something Wrong With Glenn, Dec. 1994
Letter From Andria Merrill, Dec. 1994
Julia Saunders, April 1993
An Angel From Heaven (Lois Newswanger), April 1993
Jason Kendall, April 1993
Nick's Story, Dec. 1993
Amos and the Brain Tumor, May 1992
Chad & His Last Hospitalization, May 1992
Jordan Groff, Dec. 1992
Omar from Saudi Arabia, May 1992
Cory Eck, April 1991
Our Special Story About Leanna, April 1991
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Low Protein Recipes & Food and Formula Information
Taco Dip, Tortilla Chips, Chex Mix, Apple Dumplings, Chicken Fajita, Summer/Fall 2006
Chocolate Revel Bars, Winter/Spring 2003-2004
Rice Salad, Winter/Spring 2003-2004
Potato Salad, Winter/Spring 2003-2004
Cambrooke Foods MocNuggets, Winter/Spring 2003-2004
Cambrooke's School Lunch Program, Spring/Summer 2003
Source of Nutritional Data, Spring/Summer 2003
Baked Rice, Mushroom Burgers, Spinach Dip, Hush Puppies, Spring/Summer 2003
Heating Metabolic Formulas, Fall/Winter 2002-2003
MSUD Food List Booklet, Fall/Winter 2002-2003
Cambrook's Rewards Club, Fall/Winter 2002-2003
Herb Pretzels, Apple Tapioca, Pizza Crust, Cheese Sauce, Cheese Potatoes, Creamy Sorbet, Fall/Winter 2002-2003
DonutsLo-Pro Recipe, DonutsFamily Recipe, Baked BeansLoPro Recipe, Rice PilafLo-Pro Recipe, Spring/Summer 2002.
Bread SticksLo-Pro Recipe, Bread SticksFamily Recipe, Taco SoupLoPro Recipe, Taco SoupFamily Recipe,
Pizza CasseroleLo-Pro Recipe, Pizza CasseroleFamily Recipe, Simple Hash Brown, Fall/Winter 2001-2002
Bread Stuffing, Potato Stuffing, Pumkin Apple Streusel Muffins, Apple Goodie, Peppermint Crunch Cookies, Easy Punch, Pie Crust, Apple Pie, Pumpkin Pie, Fruit Cupcakes , Fall/Winter 2000-2001
Grilled Mushrooms, Campfire Potatoes, Ice Cream Cones, Pita Bread, Veggie Salad- For Pita Bread, Watermelon Ice, Fresh Vegetable Salad, Old-fashioned Lemonade, Cumber Salad, Red Velvet Cake & Frosting For Red Velvet Cake, Spring/Summer 2000
New foods, Spring/Summer 2000
Bread, Dinner Rolls, Soft Pretzels, Pizza, Low Protein Ice Cream, Apple Salad, Fudgy Buttons, Chocolate Spiders, Fall/Winter 1999/2000
Sandwich Cheese Slices, Fall/Winter 1999/2000
Formula Suggestion, Spring/Summer 1999
Lo Pro Pancakes, Mozzarella Cheese Sticks, Breaded Mushrooms, Breaded Cauliflower, Fruit Slush, Ginger Glazed Carrots, Strawberry Sorbet, Lemon Bars, & Strawberry Tapioca, Spring/Summer 1999
Ice Cream Solution, Fall/Winter 1998-99
New Uncle Henry's Low Protein Pretzels, Fall/Winter 1998-99
Hints From Mothers, Fall/Winter 1998-99
International Food Bank, Fall/Winter 1998-99
Herb Pretzels, Chex School Fuel, Crispy Chips, Tangy Dip, Chocolate Waffle Cookies, Cheese Ball, Fall/Winter 1998-99
Checking Out New Foods, Spring/Summer 1998
Low Pro Pretzels, Chocolate Mint Brownies, Jordan's Chili, & Master Mix Pancakes, Spring/Summer 1998
Scalloped Potato Casserole, Waffles, Low Protein Classic Chocolate Chip Cookies, Cherry Crumb Cake, Orange Sherbet & Lasagna, Fall/Winter 1997-98
Food News, Fall/WinterCheeses and Loprofin Foods, 1997-98
Onion Rice Casserole, Vegetable Croquettes, Molasses Cookies, Dream Dessert, Fresh Fruit Pops & Saucy Donuts, Spring/Summer 1997
Handy Hints and Products, New MSUD Formula, Spring/Summer 1997
Peppermint Patties, Carmel Krispy Bars, Marshmallows Puffs, Christmas Hard Candy,Ê Fall/Winter 1996-97
A Low Protein Milk Substitute, Note on Medical Foods, Fall/Winter 1996-97
Low Protein Cheesecakes, Cathedral Window Cookies, White Bread, Low Protein Noodles, Substitutes for Milk & Ice Cream, Spring/Summer 1996
Food For ThoughtHelping your child on a special diet eat right, Spring/Summer 1996
BBQ Green Beans, Whoopie Pies, Tips From Mothers, Tips On Mixing Formula, Winter 1995-96
Low Protein Macaroni & Cheese, Oat Burgers, mountain Pies & Camper's Casserole, Spring 1995
Tips For Travel & Camping, Spring 1995
Low Pro Fruit Pizza, Easy Apple Salad, Orange Julius, Cool Summer Dessert or Salad, May 1994
Chili Rigantini, Cheese Sauce, Steve's Peanut Butter & Peanut Butter Cups, Dec. 1994
New Formula From Ross Laboratories, April 1993
Pineapple Creme Dressing, Honey Lime Dressing, Creamy Guacamole, Trish's Best White Bread & More On Bread Makers, April 1993
Low Protein Pretzels, Easy Macaroni & Cheese, Dec. 1993
Vegetable Perogies & Cornstarch Pudding, May 1992
Spicy Candied Yams, Basic Pie Crust & Pumpkin Pie, Dec. 1992
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Sharing Section and MSUD Family Information
Improving Self-Esteem, Summer/Fall 2006
Essay by David Fischler, Summer/Fall 2006
Nikolai Rudd letter, Summer/Fall 2006
Poems by Nikolai Rudd, Summer/Fall 2006
Importance of Medical Identification, Winter/Spring 2003-2004
Thousands of Miles Apart, Winter/Spring 2003-2004
My First Big Trip, Fall/Winter 2002-2003
Tips for Preparing and Traveling in a foreign Country, Fall/Winter 2002-2003
Have MSUD—Will Travel, Fall/Winter 2002-2003
Nearly There, Fall/Winter 2002-2003
Formula Battles, Fall/Winter 2002-2003
To G or not to G, That is the Question?, Fall/Winter 2002-2003
Interaction Between Valproate and Branced-chain amino acid Metabolism, Spring/Summer 2002
Misdiagnosed with MSUD, Spring/Summer 2002
With No Prior Experience, Spring/Summer 2002
Comments from eGroup Members, Spring/Summer 2002
Our Experience with Valproic AcidLisa A. Obrien (Machak), Spring/Summer 2002
Melissa & Jessica, Fall/Winter 2001-2002
When the student becomes the teacher, Fall/Winter 2001-2002
Flu Shots, Fall/Winter 2001-2002
Sanse's Gallbladder Surgery, Spring/Summer 2001
Britney's Journey to Paradise, Spring/Summer 2001
Meeting NeedsLou Ann's Letter & The Family From Iran, Spring/Summer 2001
Join the Exclusive MSUD eGroup, Fall/Winter 2000-2001
Tax Deductions for Conferences, Fall/Winter 2000-2001
McDonald's Salads, Fall/Winter 2000-2001
MSUD Nick's Story, Spring/Summer 2000
Jordan's Surgery, Spring/Summer 2000
All Is Not Well In Brazil & In Other Countries, Spring/Summer 2000
Congratulations to the Newly Married, Spring/Summer 2000
Life With MSUD (Kylie Williams), Fall/Winter 1999/2000
Grandson With MSUD, Fall/Winter 1999/2000
A Grandparent's Perspective, Fall/Winter 1999/2000
On Diet For Almost Thirty Years, Fall/Winter 1999/2000
Our Experience With Ritalin, Fall/Winter 1999/2000
MSUD Picnic in Pennsylvania, Fall/Winter 1999/2000
A Brother's Tribute, Spring/Summer 1999
A Special Day For Chelsea and Noah, Spring/Summer 1999
The Ruter Family's Big Apple Adventure, Spring/Summer 1999
Families Meet in Ohio, Spring/Summer 1999
Late Diagnosis, Spring/Summer 1999
School Honor (Melissa Berman), Spring/Summer 1999
Our Trip With A Special Wish, Fall/Winter 1997-98
A Wish Granted, Fall/Winter 1997-98
Keith Martin Graduates, Fall/Winter 1997-98
Sue Ann has Been Sharing Editor's Note, Sue Ann McKnightMy Story, Fall/Winter 1997-98
In Sympathy (death of Leroy Martin), Spring/Summer 1997
From Sickness to Health (Kathryn's liver failure & transplant), Spring/Summer 1997
Sue Ann Has a Second Child, Spring/Summer 1997
A College Graduate (Nikolai Rudd), Spring/Summer 1997
International Aspects of MSUDChile, Spring/Summer 1997
International Aspects of MSUDAustralia, Spring/Summer 1997
Congratulations Tiffany, Fall/Winter 1996-97
Letter From Jennifer Saunders, Fall/Winter 1996-97
Question & Answer Session (Symposium 1996), Fall/Winter 1996-97
Walgreen carries MSUD Formula, Spring/Summer 1996
Skills For Independence, Spring/Summer 1996
The Gauvin Family, Spring/Summer 1996
ANMD Parent Conference Review, Winter 1995-96
MSUD Workshop, Spring 1995
Symposium Experience, Spring 1995
Attention Deficit Disorder or MSUD, Spring 1995
Jordan's Chicken Pox Experience, Spring 1995
Shayla and Her MRI, April 1993
Diana at the Symposium, Dec. 1994
Letter From Nicky Guthrie, Dec. 1994
Tony Is Greatly Missed, May 1994
A Letter From Scotland, May 1994
Editorial: Chlorinated pool incident, Dec. 1994
A Positive Learning Experience, Dec. 1994
Sad News: Death of Scott Foster and the Scott C. Foster Memorial Fund, Dec. 1994
The Big Picnic, Dec. 1993
He's Our Miracle: Jordan Groff's hospitalization, Dec. 1993
Editorial: Shayla getting license and contrast in a early and an late diagnosis, April 1993
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Feature ArticlesProfessionals
Addition to Clinic, Fall/Winter 2000-2001
Robert Guthrie: The PKU Story, Spring/Summer 1999
Dr. Robert Guthrie Honored, May 1995
A Modern Dr. Schweitzer (Dr. Morton's acceptance speech), May 1994
The Clinic For Special Children, Dec. 1993
Dr. Morton Recognized With the Albert Schweitzer Award, Dec. 1993
Dr. Morton's Calling: Beginning the Clinic For Special Children, April 1991
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Miscellaneous
Personally from the Brubachers, Winter/Spring 2003-2004
MSUD in Saudi Arabia, Spring/Summer 2001
Follow-up on Fenugreek Tea and the Smell of Maple Syrup, Fall/Winter 2000-2001
The Special Kid's Network (For Pennsylvania Families Only), Spring/Summer 1998
National Patient Air Transport Helpline, Spring/Summer 1998
MSUD and Traveling, April 1993
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