Search

At Emory University, Atlanta, GA

Join us June 22-27, 2009 for the 15th Annual Metabolic Camp at Emory University in Atlanta, GA! This is a model, research-based camp for young women 12 years age and older with PKU and MSUD, which focuses on building social support through a variety of activities including nutrition education, cooking classes, discussion groups, and local field trips. The camp typically accepts 30 attendees on a first-come, first-served basis. Registered dietitians from across the nation and around the world volunteer their time to serve as camp counselors, and nutrition students provide support as assistant counselors. The cost of the camp is $325 per person, which includes all sponsored meals, lodging, group activities, field trips, and closing banquet. Partial scholarships are available for certain financial circumstances. Check with your local RD and clinic to see if local sponsorship is available.

For more information about the Metabolic Camp, please contact Rosalynn Borlaza (Camp Coordinator) at (404) 778-8521 or This email address is being protected from spambots. You need JavaScript enabled to view it..

Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

Read More

In The Professional Journals

A Patient with MSUD: Acute Management with Sodium Phenylacetate/Sodium Benzoate and Sodium Phenylbutyrate

Read More

Indigo Charlie Mays - Variant MSUD Age 4

Meet our girl Indigo Charlie Mays. After a smooth pregnancy and delivery, she was born on July 21st, 2013 in Seattle, WA.

Read More

20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

Read More

MSUD Awareness Day

Now more than ever before we are hearing about National Awareness Days which are set by organizations or the government to bring attention to issues of importance.

Read More

Fundraising

In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

Read More

Transform

A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates