At Emory University, Atlanta, GA

Join us June 22-27, 2009 for the 15th Annual Metabolic Camp at Emory University in Atlanta, GA! This is a model, research-based camp for young women 12 years age and older with PKU and MSUD, which focuses on building social support through a variety of activities including nutrition education, cooking classes, discussion groups, and local field trips. The camp typically accepts 30 attendees on a first-come, first-served basis. Registered dietitians from across the nation and around the world volunteer their time to serve as camp counselors, and nutrition students provide support as assistant counselors. The cost of the camp is $325 per person, which includes all sponsored meals, lodging, group activities, field trips, and closing banquet. Partial scholarships are available for certain financial circumstances. Check with your local RD and clinic to see if local sponsorship is available.

For more information about the Metabolic Camp, please contact Rosalynn Borlaza (Camp Coordinator) at (404) 778-8521 or This email address is being protected from spambots. You need JavaScript enabled to view it..

Indigo Charlie Mays - Variant MSUD Age 4

Meet our girl Indigo Charlie Mays. After a smooth pregnancy and delivery, she was born on July 21st, 2013 in Seattle, WA.

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From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

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As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

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Adjusting Protein In An Adult With MSUD

A little over a year ago, in January, Jeff was just not himself. He had limited energy, was not eating well, and often appeared slightly agitated.

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My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

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A Child's Life

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