Facebook, the social networking website, allows members an opportunity to link their friends, and potentially all of Facebook, to a cause or organization they are an activist for. The link occurs by using the application "Causes." Amnesty International, Relay for Life, austism awareness, and more are all linked through Causes.

I have started a cause on Facebook for MSUD. In doing so I hope to make people more aware of the disorder, and hopefully create fundraising opportunities.

To join the cause, you do need to be a member of Facebook, which is free to join. The link is

To join the cause, follow this link
The link to join the cause is on the right. Click on this, and follow the directions.

If you have any questions, please feel free to email Paula Ruter at This email address is being protected from spambots. You need JavaScript enabled to view it..

In The Professional Journals

A Patient with MSUD: Acute Management with Sodium Phenylacetate/Sodium Benzoate and Sodium Phenylbutyrate

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NBS-MSUD Connect: Advancing MSUD Research And More


Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

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As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

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Adjusting Protein In An Adult With MSUD

A little over a year ago, in January, Jeff was just not himself. He had limited energy, was not eating well, and often appeared slightly agitated.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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Cambrooke Foods Hosts Local Event

Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years.

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A Child's Life

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