Facebook, the social networking website, allows members an opportunity to link their friends, and potentially all of Facebook, to a cause or organization they are an activist for. The link occurs by using the application "Causes." Amnesty International, Relay for Life, austism awareness, and more are all linked through Causes.

I have started a cause on Facebook for MSUD. In doing so I hope to make people more aware of the disorder, and hopefully create fundraising opportunities.

To join the cause, you do need to be a member of Facebook, which is free to join. The link is

To join the cause, follow this link
The link to join the cause is on the right. Click on this, and follow the directions.

If you have any questions, please feel free to email Paula Ruter at This email address is being protected from spambots. You need JavaScript enabled to view it..

20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

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My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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Sweet Odyssey

Artur Santos was born on January 18, 2002, the second son of Soraya and Idario Santos. They never imagined how their lives were about change as the second baby arrived.

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Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

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MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

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A Child's Life

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