Me at an archeological dig!
Age 23, transplanted 1/06

On January 2, 2008, at 6 am, I boarded an Israir plane with 19 other young adults, many of whom I had never met before. We were off to Israel for a 12 day adventure, as part of the Taglit Birthright Israel program- a free trip for Jewish males and females, ages 18 - 26, funded by the Israeli government, the Jewish Federation and some private donors. We had a smaller group than most other Birthright groups, and a few more staff members, but other than that, it was just like any other Birthright trip- busy from morning til night with sightseeing, hiking, tasting new foods, meeting many people, learning about Israel and about each other. Our tour guide, Galit, was incredible and so knowledgeable about all of the places we visited. My photos tell part of my experience. What you can't see are the friendships made, the pride I felt for Israel, and the fulfillment I feel for having been able to enjoy this awesome gift, just as my brother Ari did last year, and other Jewish young adults have been for the past 10 years.

Synagogue in Safed
We boarded the plane for the return trip as a group of close friends, very tired and eager to share our experiences with our friends back home! Taking my anti-rejection meds was a little tricky because of the time difference, but I did well, and my labs after the trip were perfect!

Our group near Masada, along with leaders and soldiers who traveled with us for a few days. (I’m in front right corner)

Melvin Carruth

This letter is a tribute to my brother Melvin Carruth! We believe he is one of the oldest living African Americans with Maple Syrup Urine Disease.

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NBS-MSUD Connect: Your One-Stop Shop For MSUD Resources

NBS-MSUD Connect was launched as part of the Newborn Screening Connect patient registry (NBS Connect) in 2013 through a partnership between the Department of Human Genetics at Emory University, the Maple Syrup Urine Disease (MSUD) Family Support Group and other key stakeholders.

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Cambrooke Therapeutics

Cambrooke Therapeutics continues to expand its line of delicious and nutritious low protein foods to help improve the lives of individuals with Inborn Errors of Metabolism such as MSUD.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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Emory Metabolic Camp 2018 Announcement

Join us June 18-23, 2018 for the 24th Annual Metabolic Camp at Emory University in Atlanta, GA!

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From The Chairman’s Desk

As I sit here reflecting on how much the care and treatment of MSUD has changed over the years, my mind goes back to 1978 when our son Keith was born.

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MSUD Advocacy Report

Medical Nutrition Equity Act

The Medical Nutrition Equity Act (MNEA) would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs, including Children’s Health Insurance Program, Tricare, Medicaid, Medicare, and Federal Employee Health Benefit Plans, to provide coverage for formula and low-protein foods for all children and adults with MSUD.

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The MSUD Family Support Group Is Excited To Announce Their Participation In The Million Dollar Bike Ride

The MSUD Family Support Group is excited to announce their participation in The Million Dollar Bike Ride

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19th Biennial MSUD Symposium

I can’t believe that almost two years have passed and it is time for another MSUD Symposium! I am especially excited about this conference because I’ve built in extra time for social interaction.

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A Child's Life

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