The future: an object of society’s imagination, hopes, and dreams. Countless sciencefiction films have told what we as humans wish the future to be; however, for me it is not about flying space crafts or holograms, but merely a quest for luscious treats. If I had the ability to travel through time, I would venture to the future in search of a cure for Maple Syrup Urine Disease, a rare metabolic disorder, which ravages my life, and strangles my ability to eat those luscious treats.

Over the years, I have watched a myriad of people gulp down shakes, plunge into Dairy Queen Blizzards, and gorge themselves on chocolate. With limited enzyme activity, I have not had this opportunity and it preys on my mind daily. This, of course, is why I would travel to the future; to run rampant through Steak ‘n’ Shake; to eat, sleep, and breathe Dairy Queen; and most importantly, indulge myself in the every-tasty treats from the Hershey’s Chocolate Factory.

After relishing in the aforementioned goodies, my life would be complete and I would feel as though I am on top of Mount Everest.

Until time travel is perfected, I will just have to wait outside of the ice cream shops, nibbling on broccoli, and attempting to swallow a handful of peas.

Melvin Carruth

This letter is a tribute to my brother Melvin Carruth! We believe he is one of the oldest living African Americans with Maple Syrup Urine Disease.

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NBS-MSUD Connect: Your One-Stop Shop For MSUD Resources

NBS-MSUD Connect was launched as part of the Newborn Screening Connect patient registry (NBS Connect) in 2013 through a partnership between the Department of Human Genetics at Emory University, the Maple Syrup Urine Disease (MSUD) Family Support Group and other key stakeholders.

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Cambrooke Therapeutics

Cambrooke Therapeutics continues to expand its line of delicious and nutritious low protein foods to help improve the lives of individuals with Inborn Errors of Metabolism such as MSUD.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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Emory Metabolic Camp 2018 Announcement

Join us June 18-23, 2018 for the 24th Annual Metabolic Camp at Emory University in Atlanta, GA!

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From The Chairman’s Desk

As I sit here reflecting on how much the care and treatment of MSUD has changed over the years, my mind goes back to 1978 when our son Keith was born.

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MSUD Advocacy Report

Medical Nutrition Equity Act

The Medical Nutrition Equity Act (MNEA) would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs, including Children’s Health Insurance Program, Tricare, Medicaid, Medicare, and Federal Employee Health Benefit Plans, to provide coverage for formula and low-protein foods for all children and adults with MSUD.

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The MSUD Family Support Group Is Excited To Announce Their Participation In The Million Dollar Bike Ride

The MSUD Family Support Group is excited to announce their participation in The Million Dollar Bike Ride

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19th Biennial MSUD Symposium

I can’t believe that almost two years have passed and it is time for another MSUD Symposium! I am especially excited about this conference because I’ve built in extra time for social interaction.

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A Child's Life

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