The quinceanera is a young Hispanic woman's celebration of her fifteenth birthday. This birthday is celebrated differently from other birthdays. The quinceanera is considered to be the most important birthday as it symbolizes the transition from childhood to womanhood. This event is usually celebrated with an elaborate ritual. Here is a description of Elsis’ quinceanera, which took place November 26, 2005.

Celebration of the quinceanera

An elaborate ritual is executed to celebrate the quinceanera. The celebration begins with a Thanksgiving mass (Misa de Acción de Grácias). At this mass, the quinceanera is accompanied by a head chamberlain (chambelan), several other chamberlains, maids of honor (damas), her parents, and godparents (padrinos). The quinceanera, chamberlains, and maids are all dressed in formal attire, but the quinceanera is uniquely dressed while the chamberlains and maids are in matching attire. Sometimes the head chamberlain is dressed uniquely as well to distinguish him from the rest of the chamberlains. At this mass, the quinceanera, along with the rest of her family and friends, thank God for all their blessings.

After the mass, a feast usually follows either at the family's home or at a banquet hall. At this feast there is food and dancing. Special party favors (recuerdos) are distributed to the guests to remember this special event. During this feast a celebration dance is performed. It usually includes a choreographed waltz with the quinceanera, the chamberlains and maids of honor. In this waltz it is customary to have a portion dedicated to symbolizing the transition from childhood to womanhood. In this special dance there is also a portion dedicated for the quinceanera to thank her father, and other relatives, with a dance.

Elsis had to do alot of work for this event, including photo shooting, dance practicing. It took a year to plan, and Elsis was cooperative and excited.

Elsis has classic MSUD. She was diagnosed when she was 9 days old and was really in a critical condition. She had to get dialysis and all the other medical interventions, and stayed in the Hospital for about 2 months.

Now Elsis is getting ready to go Forrest Park High School, 9th Grade. She enjoys playing games on the computer and enjoys her game boy. She also has a brother. His name is Anthony (2 years old) and she really enjoys helping take care of him. Anthony does not have MSUD. Even though Elsis did her Spanish celebration, now she is looking forward to her sweet 16th which is also part of her, because she was born in America, in Alexandria, VA.

Melvin Carruth

This letter is a tribute to my brother Melvin Carruth! We believe he is one of the oldest living African Americans with Maple Syrup Urine Disease.

Read More

NBS-MSUD Connect: Your One-Stop Shop For MSUD Resources

NBS-MSUD Connect was launched as part of the Newborn Screening Connect patient registry (NBS Connect) in 2013 through a partnership between the Department of Human Genetics at Emory University, the Maple Syrup Urine Disease (MSUD) Family Support Group and other key stakeholders.

Read More

Cambrooke Therapeutics

Cambrooke Therapeutics continues to expand its line of delicious and nutritious low protein foods to help improve the lives of individuals with Inborn Errors of Metabolism such as MSUD.

Read More

Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

Read More

Emory Metabolic Camp 2018 Announcement

Join us June 18-23, 2018 for the 24th Annual Metabolic Camp at Emory University in Atlanta, GA!

Read More

From The Chairman’s Desk

As I sit here reflecting on how much the care and treatment of MSUD has changed over the years, my mind goes back to 1978 when our son Keith was born.

Read More

MSUD Advocacy Report

Medical Nutrition Equity Act

The Medical Nutrition Equity Act (MNEA) would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs, including Children’s Health Insurance Program, Tricare, Medicaid, Medicare, and Federal Employee Health Benefit Plans, to provide coverage for formula and low-protein foods for all children and adults with MSUD.

Read More

The MSUD Family Support Group Is Excited To Announce Their Participation In The Million Dollar Bike Ride

The MSUD Family Support Group is excited to announce their participation in The Million Dollar Bike Ride

Read More

19th Biennial MSUD Symposium

I can’t believe that almost two years have passed and it is time for another MSUD Symposium! I am especially excited about this conference because I’ve built in extra time for social interaction.

Read More


A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates