MSUD Symposium 2006 was held in Dublin, Ohio at the Embassy Suites on June 15-17th.

Approximately 250 people attended the three day event. MSUD families from 20 of the 50 United States were present. In
addition, MSUD families and professionals from Canada, Brazil, Argentina, India, Honduras, Philippines, Costa Rica, and South Korea attended the conference. Seventy individuals with MSUD ranging in age from infant to 47 years old were present.

A reception was held Thursday evening in the beautiful atrium of the Embassy Suites. During that time, MSUD families
enjoyed renewing old friendships and making new friends.

Friday was a full day with many topics and speakers, including:
  • Research Update on MSUD Mouse Models, Gregg Homanics, PhD
  • Current Status of Transplantation for MSUD, George Mazariegos, MD
  • Improving Self-Esteem, Darlene Honigford, LSW
  • MSUD-Teen/Young Adult: Jordan Bulcher, Libby Stone, Mark Silva, Galen Carrington, Alana Moceri
  • Breakouts (participants attended 2 of the 4 sessions, depending on their interests)
  • MSUD Basics, Dennis Bartholomew, MD
  • Sharing Daily Challenges, Elaina Jurecki, RD
  • Liver Transplantation, Parent Perspective, Denise Pinskey
  • It's So Easy-Low Pro Cooking, Malathy Ramanujam
  • MSUD Group Photo
Saturday was both informative and fun with a half-day of speakers and half-day picnic:
  • New Developments in the Treatment of Maple Syrup Disease, Holmes Morton, MD
  • Nutritional Management of MSUD, Elaina Jurecki, RD
  • MSUD Board Update
  • Closing Video
Family Gathering at a nearby park for all symposium attendees. All present enjoyed carnival games, large climbing toy, volleyball, badminton, juggler and, of course, lots of protein-free candy.

Special thanks to United Services Foundation for their generous donation, which allowed many MSUD families to attend the symposium.

Plan to attend the next symposium in the Summer of 2008. Don't miss the opportunity to learn from professionals and MSUD parents and feel the warmth and companionship of our special group!

Sandy Bulcher, Director, MSUD Family Support Group, Coordinator of MSUD Symposium

Symposium scrapbook

{yoogallery src=[/images/stories/msudsymposium2006] width=[100]}

Melvin Carruth

This letter is a tribute to my brother Melvin Carruth! We believe he is one of the oldest living African Americans with Maple Syrup Urine Disease.

Read More

NBS-MSUD Connect: Your One-Stop Shop For MSUD Resources

NBS-MSUD Connect was launched as part of the Newborn Screening Connect patient registry (NBS Connect) in 2013 through a partnership between the Department of Human Genetics at Emory University, the Maple Syrup Urine Disease (MSUD) Family Support Group and other key stakeholders.

Read More

Cambrooke Therapeutics

Cambrooke Therapeutics continues to expand its line of delicious and nutritious low protein foods to help improve the lives of individuals with Inborn Errors of Metabolism such as MSUD.

Read More

Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

Read More

Emory Metabolic Camp 2018 Announcement

Join us June 18-23, 2018 for the 24th Annual Metabolic Camp at Emory University in Atlanta, GA!

Read More

From The Chairman’s Desk

As I sit here reflecting on how much the care and treatment of MSUD has changed over the years, my mind goes back to 1978 when our son Keith was born.

Read More

MSUD Advocacy Report

Medical Nutrition Equity Act

The Medical Nutrition Equity Act (MNEA) would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs, including Children’s Health Insurance Program, Tricare, Medicaid, Medicare, and Federal Employee Health Benefit Plans, to provide coverage for formula and low-protein foods for all children and adults with MSUD.

Read More

The MSUD Family Support Group Is Excited To Announce Their Participation In The Million Dollar Bike Ride

The MSUD Family Support Group is excited to announce their participation in The Million Dollar Bike Ride

Read More

19th Biennial MSUD Symposium

I can’t believe that almost two years have passed and it is time for another MSUD Symposium! I am especially excited about this conference because I’ve built in extra time for social interaction.

Read More


A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates