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Jordan Bulcher, 16 years old with Classic MSUD, participated in the state marching band finals with the Olentangy Liberty High School Marching Band. The band received the highest rating, Superior!
























Elan Geffen has fulfilled a lifelong dream of becoming a Volunteer Fireman! He is part of a special Rehab Unit that responds to fires and "Serves Those Who Serve" by seeing to it that firefighters stay hydrated and fed in order to perform their duties. Deer Park Unit 8 in Cherry Hill, NJ responds at all hours, day or night with their well equipped vehicle shown above. Elan is 21 years old with Classic MSUD.

From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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Our Story

On April 23 2015, our precious firstborn son Eliyahu Tuvia was born in Jacksonville, FL. All seemed well and we took our bundle of joy home.

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NBS-MSUD Connect: Advancing MSUD Research And More

NBSCONNECT.ORG

Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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From The Editor

Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel.

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In The Professional Journals

A Patient with MSUD: Acute Management with Sodium Phenylacetate/Sodium Benzoate and Sodium Phenylbutyrate

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Transform

A Child's Life

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