My name is Bernardo Villela, I am twenty-four years old and I have Classic MSD. My daily routine is rather simple. I have my formula three times a day: breakfast, lunch and dinner. I watch my protein intake never consuming more than twelve grams per day. MSD is not something I think of that much because I don’t feel it really impedes me. I haven’t really felt that MSD has complicated my life since I was very young. I haven’t been hospitalized in eleven years, and the last time was due in part to the fact that I had chicken pox. The way I look at it, and what I usually tell people, is that I have a special diet because that’s all it feels like most of the time.

I recently graduated from C.W. Post- Long Island University with a BFA in Film. During my two years there I was on the honor roll three out of four semesters and made the Deans List in my senior year. I had previously attended Fairleigh Dickinson University- Madison for four years where I became well versed in film theory and screenwriting before transferring to C.W. Post to focus on the production aspects of film.

This summer I wrote and directed Suffer the Little Children a non-commercial, non-exclusive adaptation of the Stephen King short story by the same name. I acquired the rights over a year ago and lead the film from casting all the way through to the final edit. The film will be going on the festival circuit in 2006 ( I am currently employed at Stonestreet Studios in New York, as a director, editor and instructor. Stonestreet is a conservatory which teaches film acting to theater students and works in conjunction with New York University - Tisch School of the Performing Arts.

The older I’ve gotten the less I’ve thought about MSD. Sometimes I go for days without even thinking about the fact that I have it. I take good care of myself and am very aware of what I need to do to keep my levels down. All in all I haven’t let MSD get in the way of what I want to accomplish. I’ve set goals for myself and I’m determined to achieve them.

I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

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Our Story

On April 23 2015, our precious firstborn son Eliyahu Tuvia was born in Jacksonville, FL. All seemed well and we took our bundle of joy home.

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From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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Updates To Nutrition Management Guidelines

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A Child's Life

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