Jody and Galen Carrington of Lawrenceburg, Indiana are very proud to announce their son, Galen Jr. age 15 (intermittent MSUD), went to Indiana's State Swimming Championships in March. Galen Jr. qualified to swim in 2 relays: the 200yd Freestyle Relay and the 200yd Medley Relay where Galen swam the butterfly stroke. His team placed 7th and 14th out of 24 teams across Indiana. Galen started his swimming career 3 and 1/2 yrs ago with East Central Swim Team, knowing only the freestyle stroke. Who could ever imagine that in just 3 short years Galen, who has MSUD, would swim at the state level! Galen has far exceeded any expectations, especially when his endurance is such an issue. Galen takes several supplements includeing Carnitine, flax seed oil, extra Thiamine and B complex vitamins which he feels helps with energy levels. (Please consult your physician before taking any supplements. The role of these supplements in increasing energy levels has not been scientifically proven.). When Galen was born, he was labeled as "classic MSUD" and was hospitalized 5 times before the age of 3. On one occasion, he even stopped breathing. As he got older, Galen was able to tolerate higher levels of Leucine and was allowed 15 grams of protein per day. Now Galen is relatively healthy, although he has trouble eating enough calories to maintain his weight while swimming 3 miles a day! Galen is currently having a hard time switching formulas since MSUD Diet Powder will no longer be available.

Congratulations to Galen and continued success with his swimming career!!!


In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

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My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

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As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

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Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

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Sweet Odyssey

Artur Santos was born on January 18, 2002, the second son of Soraya and Idario Santos. They never imagined how their lives were about change as the second baby arrived.

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20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

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A Child's Life

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