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Jody and Galen Carrington of Lawrenceburg, Indiana are very proud to announce their son, Galen Jr. age 15 (intermittent MSUD), went to Indiana's State Swimming Championships in March. Galen Jr. qualified to swim in 2 relays: the 200yd Freestyle Relay and the 200yd Medley Relay where Galen swam the butterfly stroke. His team placed 7th and 14th out of 24 teams across Indiana. Galen started his swimming career 3 and 1/2 yrs ago with East Central Swim Team, knowing only the freestyle stroke. Who could ever imagine that in just 3 short years Galen, who has MSUD, would swim at the state level! Galen has far exceeded any expectations, especially when his endurance is such an issue. Galen takes several supplements includeing Carnitine, flax seed oil, extra Thiamine and B complex vitamins which he feels helps with energy levels. (Please consult your physician before taking any supplements. The role of these supplements in increasing energy levels has not been scientifically proven.). When Galen was born, he was labeled as "classic MSUD" and was hospitalized 5 times before the age of 3. On one occasion, he even stopped breathing. As he got older, Galen was able to tolerate higher levels of Leucine and was allowed 15 grams of protein per day. Now Galen is relatively healthy, although he has trouble eating enough calories to maintain his weight while swimming 3 miles a day! Galen is currently having a hard time switching formulas since MSUD Diet Powder will no longer be available.

Congratulations to Galen and continued success with his swimming career!!!

Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

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Meet our girl Indigo Charlie Mays. After a smooth pregnancy and delivery, she was born on July 21st, 2013 in Seattle, WA.

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MSUD Awareness Day

Now more than ever before we are hearing about National Awareness Days which are set by organizations or the government to bring attention to issues of importance.

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Fundraising

In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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Adjusting Protein In An Adult With MSUD

A little over a year ago, in January, Jeff was just not himself. He had limited energy, was not eating well, and often appeared slightly agitated.

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A Child's Life

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