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Art Award For Melissa

Melissa Berman, Peabody, Massachusetts, daughter of Bob Berman was recognized for her art talent in the Sixth Congressional District Art Awards. A student at Peabody Veterans Memorial High School, she was named "best of school winner." Melissa, 20, has classic MSUD. She sold a painting of hers in December for the first time, and she received $60 for it. Melissa intends to pursue a career in art. We extend a hearty congratulations to her for her accomplishments.


Jessica Featured in Reaching Out
Jessica Berman, 17, is Melissa's younger sister and also has MSUD. Bonnie Brien is Jessica's "Big Sister." Bonnie has been including Melissa in their adventures and even accompanied them to Symposium '98 in Lancaster, Pennsylvania. The girls' father Bob is thrilled that Bonnie is a "Big Sister" to Jessica and is pleased Melissa is included in many of their outings. (Melissa and Jessica's mother died soon after Jessica was born.) Jessica is on the left in the photo above and Melissa on the right. Bonnie is in the middle - a good friend to both girls.

Jessica was named Student of the Month at her school in October 2001. Our sincere congratulations to Jessica. Keep up the good work.

Melvin Carruth

This letter is a tribute to my brother Melvin Carruth! We believe he is one of the oldest living African Americans with Maple Syrup Urine Disease.

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NBS-MSUD Connect: Your One-Stop Shop For MSUD Resources

NBS-MSUD Connect was launched as part of the Newborn Screening Connect patient registry (NBS Connect) in 2013 through a partnership between the Department of Human Genetics at Emory University, the Maple Syrup Urine Disease (MSUD) Family Support Group and other key stakeholders.

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Cambrooke Therapeutics

Cambrooke Therapeutics continues to expand its line of delicious and nutritious low protein foods to help improve the lives of individuals with Inborn Errors of Metabolism such as MSUD.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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Emory Metabolic Camp 2018 Announcement

Join us June 18-23, 2018 for the 24th Annual Metabolic Camp at Emory University in Atlanta, GA!

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From The Chairman’s Desk

As I sit here reflecting on how much the care and treatment of MSUD has changed over the years, my mind goes back to 1978 when our son Keith was born.

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MSUD Advocacy Report

Medical Nutrition Equity Act

The Medical Nutrition Equity Act (MNEA) would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs, including Children’s Health Insurance Program, Tricare, Medicaid, Medicare, and Federal Employee Health Benefit Plans, to provide coverage for formula and low-protein foods for all children and adults with MSUD.

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The MSUD Family Support Group Is Excited To Announce Their Participation In The Million Dollar Bike Ride

The MSUD Family Support Group is excited to announce their participation in The Million Dollar Bike Ride

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19th Biennial MSUD Symposium

I can’t believe that almost two years have passed and it is time for another MSUD Symposium! I am especially excited about this conference because I’ve built in extra time for social interaction.

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A Child's Life

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