A strong, united effort by the families of children with MSUD in Pennsylvania, along with the support and involvement of the Clinic for Special Children, paid off in a highly commended symposium. Over eighty families from across the United States and six other countries gathered at the Willow Valley Conference Center, south of Lancaster in the middle of June. Many parents brought their families for a great vacation in the heart of Pennsylvania Dutch Country. One hundred children and adults with MSUD, along with their siblings, a number of grandparents, other family members, and many professionals, brought the total to 480 at lunch on Friday, the day with the highest attendance.
Following are two reports on the Symposium reprinted from the Clinic for Special Children Newsletter (Spring 1998 issue). The Clinic chooses to call MSUD Maple Syrup Disease (MSD), but we have changed the name in the following articles to MSUD for clarity. Following these reports on the medical meeting held on Wednesday, June 17 and the Symposium (on 18 and 19), is a report of responses from persons who attended the Symposium and kindly filled out the questionnaires. I hope those who could not attend will gain a little information and an idea of the importance of these meetings to many of the families.