Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years. As a mother of two young adult PKU children (Cameron & Brooke), founder of Cambrooke and longtime board member (24-years) of the New England Connection for PKU and Allied Disorders (NECPAD), Lynn Paolella has always strived to empower the metabolic community to take advantage of Cambrooke’s facility in Ayers, Massachusetts at no charge in an effort to create ‘their own cooking, educational and/or social event’. Cambrooke’s manufacturing facility is equipped with a state of the art test kitchen, dining room & game room, which are highly suitable for social events and meetings. A tour of Cambrooke’s facility along with taste-testing of products is always available.

Local resident Susan Needleman, an adult with Classical MSUD, spearheaded a social meet-up event for individuals with MSUD and their families on August 5th. A group of 10 attendees participated in a low protein cooking workshop which focused on creating numerous delicious baked goods, both sweet and savory, featuring Cambrooke’s newly launched frozen Readi-Dough. Lynn demonstrated many examples of how to use the multipurpose dough and in turn, the group offered suggestions & created their own innovative recipes. Possible uses for this product include focaccia bread, calzones, Stromboli, pot pie pastry, cheesy breadsticks, and fried dough with cinnamon sugar.

Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

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From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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Sweet Odyssey

Artur Santos was born on January 18, 2002, the second son of Soraya and Idario Santos. They never imagined how their lives were about change as the second baby arrived.

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Indigo Charlie Mays - Variant MSUD Age 4

Meet our girl Indigo Charlie Mays. After a smooth pregnancy and delivery, she was born on July 21st, 2013 in Seattle, WA.

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I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

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A Child's Life

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