Search


In No Longer Not Allowed, Amy Gingrich shares her story of living with the disease and then undergoing a liver transplant at the age of twenty one in January of 2006 at Pittsburgh Children’s Hospital.

She tells about the hospital stays, the ups and downs of healing, subsequent health issues related to the transplant, and recovery. Gingrich also includes recipes and journal entries from her parents who provided unconditional support.

Signed books can be purchased directly through Amy (Amy Zimmerman Gingrich, 605 South Cedar St, Lititz PA 17543. Phone # 717-341-1383) or at Amazon.com (If purchased from Amazon, she will sign it at the 2018 symposium).



I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

Read More

Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

Read More

20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

Read More

Our Story

On April 23 2015, our precious firstborn son Eliyahu Tuvia was born in Jacksonville, FL. All seemed well and we took our bundle of joy home.

Read More

Cambrooke Foods Hosts Local Event

Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years.

Read More

My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

Read More

Transform

A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates