Last December Wayne Brubacher informed the MSUD Board of Directors that he was stepping down as president. With some reservation, we accepted his resignation. Please join us in thanking Wayne and Joyce for their many years of service. Although they want to be relieved from the responsibility, we will not be allowing them to disappear from the scene! We plan on keeping them involved, especially during the symposiums.

On June 27, the MSUD Board of Directors met at the Embassy Suites Hotel in Pittsburgh, Pa. The location was chosen for two reasons: it was a central location for travel and also allowed us to check out the hotel and the area restaurants as a possible future symposium location. At this meeting, the Board was re-organized with the following officers either installed or retained: Ivan Martin-President, Sandy Bulcher-Vice President, Dave Bulcher-Treasurer, and Anne Fredericks-Secretary. Joined by board members Amy Jones and Karen Dolins, we focused our discussion on future directions and long range planning for the MSUD Family Support Group. We highlighted the following goals:
  • Become more active and more visible in the genetic disease world
  • Improve the efficiency of our communication (see Editor’s Note)
  • Investigate potential research projects to support
  • Investigate the feasibility of helping other countries with a significant MSUD population set up their own support groups

Please contact us if you have any suggestions for the Board and how we could serve you better. I‘m looking forward to seeing you next year at the Symposium.

MSUD Awareness Day

Now more than ever before we are hearing about National Awareness Days which are set by organizations or the government to bring attention to issues of importance.

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Cambrooke Foods Hosts Local Event

Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years.

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In The Professional Journals

A Patient with MSUD: Acute Management with Sodium Phenylacetate/Sodium Benzoate and Sodium Phenylbutyrate

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Indigo Charlie Mays - Variant MSUD Age 4

Meet our girl Indigo Charlie Mays. After a smooth pregnancy and delivery, she was born on July 21st, 2013 in Seattle, WA.

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

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A Child's Life

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