Search

The United Services Foundation is again graciously supplying funds for the MSUD Family Support Group to help families and individuals attend the 2016 Symposium. This is intended for families or persons who would otherwise not be able to afford the travel and/or hotel expenses. Those who have never attended an MSUD Symposium will be given priority, but others may also apply. Funds are limited, so let us know as soon as possible if you are interested. For those outside the USA, it is important to get the process of passports and visas started at the beginning of 2016. Late applications do not allow enough time to obtain visas and make airline reservations. We want to make it possible for all interested persons to attend. For information contact Wayne and Joyce Brubacher at 574-862-2992 or e-mail: This email address is being protected from spambots. You need JavaScript enabled to view it..

Opportunity to get involved and meet people from around the world!

If you have a computer, and would be interested and willing to help with the financial assistance program, please contact the Brubacher’s. Help would be much appreciated, and this is an opportunity to have contact with other persons involved with MSUD and aid in helping them attend the Symposium. For details please call Wayne or Joyce at 574-862-2992 or e-mail: This email address is being protected from spambots. You need JavaScript enabled to view it..



Melvin Carruth

This letter is a tribute to my brother Melvin Carruth! We believe he is one of the oldest living African Americans with Maple Syrup Urine Disease.

Read More

NBS-MSUD Connect: Your One-Stop Shop For MSUD Resources

NBS-MSUD Connect was launched as part of the Newborn Screening Connect patient registry (NBS Connect) in 2013 through a partnership between the Department of Human Genetics at Emory University, the Maple Syrup Urine Disease (MSUD) Family Support Group and other key stakeholders.

Read More

Cambrooke Therapeutics

Cambrooke Therapeutics continues to expand its line of delicious and nutritious low protein foods to help improve the lives of individuals with Inborn Errors of Metabolism such as MSUD.

Read More

Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

Read More

Emory Metabolic Camp 2018 Announcement

Join us June 18-23, 2018 for the 24th Annual Metabolic Camp at Emory University in Atlanta, GA!

Read More

From The Chairman’s Desk

As I sit here reflecting on how much the care and treatment of MSUD has changed over the years, my mind goes back to 1978 when our son Keith was born.

Read More

MSUD Advocacy Report

Medical Nutrition Equity Act

The Medical Nutrition Equity Act (MNEA) would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs, including Children’s Health Insurance Program, Tricare, Medicaid, Medicare, and Federal Employee Health Benefit Plans, to provide coverage for formula and low-protein foods for all children and adults with MSUD.

Read More

The MSUD Family Support Group Is Excited To Announce Their Participation In The Million Dollar Bike Ride

The MSUD Family Support Group is excited to announce their participation in The Million Dollar Bike Ride

Read More

19th Biennial MSUD Symposium

I can’t believe that almost two years have passed and it is time for another MSUD Symposium! I am especially excited about this conference because I’ve built in extra time for social interaction.

Read More

Transform

A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates