The United Services Foundation is again graciously supplying funds for the MSUD Family Support Group to help families and individuals attend the 2016 Symposium. This is intended for families or persons who would otherwise not be able to afford the travel and/or hotel expenses. Those who have never attended an MSUD Symposium will be given priority, but others may also apply. Funds are limited, so let us know as soon as possible if you are interested. For those outside the USA, it is important to get the process of passports and visas started at the beginning of 2016. Late applications do not allow enough time to obtain visas and make airline reservations. We want to make it possible for all interested persons to attend. For information contact Wayne and Joyce Brubacher at 574-862-2992 or e-mail: This email address is being protected from spambots. You need JavaScript enabled to view it..

Opportunity to get involved and meet people from around the world!

If you have a computer, and would be interested and willing to help with the financial assistance program, please contact the Brubacher’s. Help would be much appreciated, and this is an opportunity to have contact with other persons involved with MSUD and aid in helping them attend the Symposium. For details please call Wayne or Joyce at 574-862-2992 or e-mail: This email address is being protected from spambots. You need JavaScript enabled to view it..

From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

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My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

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NBS-MSUD Connect: Advancing MSUD Research And More


Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

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Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

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I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

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A Child's Life

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