I was born on September 24, 1987 with classic MSUD to Tish and Mike Fuller. I had a liver transplant on February 3, 2006 in Pittsburgh. Through the nine years since being transplanted, my levels have remained in good standing without any problems with rejection.

I married Shawn Richards on September 1, 2012. On December 18th Shawn and I welcomed our first baby boy into the world. As I was hoping to get pregnant, I was referred to a high risk doctor. I was told that liver transplant patients are at risk for preeclampsia, liver rejection and preterm labor. Once I did become pregnant I was under constant observation throughout the pregnancy and we didn’t run into any of those complications. In the beginning I was monitored every month and then towards the end every week. We got to see our little guy grow through the ultrasound at every appointment.

Sawyer was estimated to be due on December 28th but as this was a high risk pregnancy the doctors delivered him a week and a half early. On the night of Sawyer’s arrival, my doctor was thinking I would have a C-section delivery. I was really hoping for a normal birth and was allowed to go into labor. After a total of 10 hours labor, we got to welcome Sawyer Michael into the world. It was more than what we thought when he was placed in my arms. I was overjoyed that our little boy was here and healthy. Both sides of the families were happy for his safe and healthy arrival. Sawyer was born 6:38pm in Columbus, Indiana. He weighed 6 pounds 13 ounces and measured 19.5 inches long. The day after his birth, the doctors ordered some blood work to be done to verify how my liver was doing. With luck on our side the liver numbers remained perfect.

Our Story

On April 23 2015, our precious firstborn son Eliyahu Tuvia was born in Jacksonville, FL. All seemed well and we took our bundle of joy home.

Read More

I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

Read More

Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

Read More


As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

Read More

MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

Read More

In The Professional Journals

A Patient with MSUD: Acute Management with Sodium Phenylacetate/Sodium Benzoate and Sodium Phenylbutyrate

Read More


A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates