I was born on September 24, 1987 with classic MSUD to Tish and Mike Fuller. I had a liver transplant on February 3, 2006 in Pittsburgh. Through the nine years since being transplanted, my levels have remained in good standing without any problems with rejection.

I married Shawn Richards on September 1, 2012. On December 18th Shawn and I welcomed our first baby boy into the world. As I was hoping to get pregnant, I was referred to a high risk doctor. I was told that liver transplant patients are at risk for preeclampsia, liver rejection and preterm labor. Once I did become pregnant I was under constant observation throughout the pregnancy and we didn’t run into any of those complications. In the beginning I was monitored every month and then towards the end every week. We got to see our little guy grow through the ultrasound at every appointment.

Sawyer was estimated to be due on December 28th but as this was a high risk pregnancy the doctors delivered him a week and a half early. On the night of Sawyer’s arrival, my doctor was thinking I would have a C-section delivery. I was really hoping for a normal birth and was allowed to go into labor. After a total of 10 hours labor, we got to welcome Sawyer Michael into the world. It was more than what we thought when he was placed in my arms. I was overjoyed that our little boy was here and healthy. Both sides of the families were happy for his safe and healthy arrival. Sawyer was born 6:38pm in Columbus, Indiana. He weighed 6 pounds 13 ounces and measured 19.5 inches long. The day after his birth, the doctors ordered some blood work to be done to verify how my liver was doing. With luck on our side the liver numbers remained perfect.

Sweet Odyssey

Artur Santos was born on January 18, 2002, the second son of Soraya and Idario Santos. They never imagined how their lives were about change as the second baby arrived.

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20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

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From The Editor

Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel.

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Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

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NBS-MSUD Connect: Advancing MSUD Research And More


Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

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From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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A Child's Life

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