On the last Sunday in October, Jeff complained of severe pain that ended up being a cecal volvulus, which is very rare. It is a serious medical issue involving the intestines where the cecum, the first portion of the large intestine, loops around itself and creates an obstruction. Ater 2 hours in the ocal emergency room trying to find a service to take him to Lancaster General, we had to drive him urselves (about a 2 hour drive) We were praying the whole time that we didn’t lose him before he could have life-saving surgery. The surgeon here and in Lancaster both agreed that Jeff had hours not days to get the operation. While we were driving him, I knew he was still alive because he was snoring. He had part of his ileum removed, plus the appendix and gallstones taken out and he battled pneumonia while in the hospital and at home. He now has a large scar up his belly. He has healed very nicely and s back to normal - working and volunteering. We are so thankful to Dr. Morton, Dr. Strauss, and Donna rom the Clinic for Special Children for their amazing medical work as well as the very dedicated nurses on the Pediatric floor at Lancaster General. It was funny to have Jeff, who turns 40 on Feb. 17 to be on that floor. He tried to take some of the nurses home. I know we tried our best but we just weren’t as pretty or as nice as the ones on the floor.

Sweet Odyssey

Artur Santos was born on January 18, 2002, the second son of Soraya and Idario Santos. They never imagined how their lives were about change as the second baby arrived.

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Our Story

On April 23 2015, our precious firstborn son Eliyahu Tuvia was born in Jacksonville, FL. All seemed well and we took our bundle of joy home.

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Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

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I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

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From The Editor

Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel.

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Cambrooke Foods Hosts Local Event

Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years.

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A Child's Life

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