Anna Elizabeth Moyer found a way to help and support children with MSUD and their families. At her death, she gifted her estate to the MSUD Family Support Group to "support research and to disseminate information concerning the disease."

Anna was born in 1917 and lived most of her life before knowledge of MSUD was common. Anna learned about MSUD from Joyce Brubacher, as Joyce's mother and Anna were friends. When Joyce and Wayne Brubacher's oldest son, Monte, died in 1974 as a result of complications resulting from MSUD, Anna was deeply touched.

Anna directed that the entirety of her estate go to help those with MSUD and to further MSUD research. Anna passed away in October 2011 at 94 years of age.  The MSUD Family Support Group is grateful to Anna Elizabeth Moyer for her generous donation.

From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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From The Editor

Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel.

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NBS-MSUD Connect: Advancing MSUD Research And More


Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

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MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

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My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

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20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

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A Child's Life

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