My husband, Dave, and I decided to take a vacation to Costa Rica. Like Wayne and Joyce Brubacher, we like to meet MSUD families from other states or countries when we travel.  I was aware that the Abarca Mora family lived in San Jose, Costa Rica and contacted them about getting together during our trip. We had some difficulty communicating due to a language barrier, but with the help of a Spanish speaking friend we were eventually able to arrange a time and place to meet.

On the evening of our first day in San Jose, Randall Abarca Mora, his wife Johanna, and their 6 year old MSUD daughter Stacy, met us at our hotel. Dave and I were very excited to meet and spend time with them.  Randall’s friend was present to assist with translation. We spent most of our time talking about our children and their lives with MSUD. Randal and Johanna shared their struggles in obtaining medical formula and low protein food for Stacy.  They are considering forming a Costa Rican MSUD support group. Hopefully, as a group they will have more influence and be able to make changes that improve the lives of the MSUD children and adults in Costa Rica.

We have always found it very rewarding to meet new MSUD families when we travel. If your travel plans allow it, we would encourage you to consider it as well.


The MSUD Family Support Group is currently funding several research projects and we are proactively looking for researchers interested in developing new treatments or finding a cure for MSUD. Significant funding is necessary if we are to accomplish this goal.
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