The National Center for Learning Disabilities (NCLD) defines executive functioning as “... a set of mental processes that helps connect past experience with present action. People use it to perform activities such as planning, organizing, strategizing, paying attention to and remembering details, and managing time and space.   It affects our ability to:
  1. Make plans
  2. Keep track of time and finish work on time
  3. Keep track of more than one thing at once
  4. Meaningfully include past knowledge in discussions
  5. Evaluate ideas and reflect on our work
  6. Change our minds and make mid-course corrections while thinking, reading, and writing
  7. Ask for help or seek more information when we need it
  8. Engage in group dynamics
  9. Wait to speak until we're called on

Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

Read More

Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

Read More


In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

Read More

Cambrooke Foods Hosts Local Event

Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years.

Read More

20th Annual White Horse Beach Charity Golf Tournament

On July 29, 2017 Charlie O’Rouke and his committee held the 20th Annual White Horse Beach Charity Golf Tournament.

Read More


As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

Read More


A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates