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As I finally sat down a few weeks after the symposium to review all the feedback I was just amazed at what an incredible and diverse group we have. Everyone had such wonderful things to say about the speakers and venue location, but most importantly the support in meeting the different families.

Here are come comments made by attendees of the 15th Bi Annual MSUD Symposium:

"The MSUD Symposium was a total breathe of fresh air. I have learned more than I thought feasible. Interacting with other families and the professional speakers was inspirational. Words cannot really explain how much I have learned and how much better I feel about Ruby's future." – Colin Kirwan, Australia

"I learned that in my lifetime I am going to live to see a cure or at least something that will enhance the quality of life. I have gained hope and inspiration."- Katie Foster

"I came here to learn about having children and the liver transplant. I learned so much and met so many new friends around my age. I am excited to learn more and to keep in touch. Thank you for all the information. It was a great Symposium!!" -Amanda Walton

"Wonderful Symposium! Thanks for all the dedicated work of the planning committee."

"Had a fantastic time for our first symposium. Very informative."- Sarita Garman

Suggestions for future symposium locations include Sydney, Australia, Honolulu ,Hawaii, Boston MA, Columbus OH, Raleigh NC, Lancaster PA, Ann Arbor MI, Atlanta GA, Salt Lake City, UT. And the winner of the 2012 MSUD Symposium is... Just kidding- you will have to wait until the spring newsletter to find out, but if you are interested in getting more involved please contact Barbara Mudrick at This email address is being protected from spambots. You need JavaScript enabled to view it. or Sandy Bulcher at This email address is being protected from spambots. You need JavaScript enabled to view it..

When I volunteered to organize this year's symposium, I knew that this was going to be different than putting on a work event, but I never expected to have such a rewarding feeling from doing something like this. When the board came to Chicago to view the Marriott almost 2 years ago there was some hesitation about my commitment to the group since we had decided to put Dylan on the liver transplant list. I assured them that MSUD is part of our lives and will always be. Dylan did have his transplant Aug 8, 2009 and I'm still here. I feel that no matter what a family's personal decision is that you should still support the MSUD community, whether financially or attending a symposium. I want Dylan and his brother Ethan to grow up understanding what an amazing group of people have this disease and to never take life for granted. I can't begin to say how proud I am to be involved with such a great group.



Fundraising

In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

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Galen Carrington Classic MSUD age 27

Galen Carrington is a 27 year old Indiana resident who has classic MSUD. He underwent liver transplantation 5 years ago at Children’s Hospital

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My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

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Now more than ever before we are hearing about National Awareness Days which are set by organizations or the government to bring attention to issues of importance.

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On April 23 2015, our precious firstborn son Eliyahu Tuvia was born in Jacksonville, FL. All seemed well and we took our bundle of joy home.

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Adjusting Protein In An Adult With MSUD

A little over a year ago, in January, Jeff was just not himself. He had limited energy, was not eating well, and often appeared slightly agitated.

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Transform

A Child's Life

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