Search

Amy & RandyAmy & Randy

Carl and Marty Zimmerman of Lititz, Pennsylvania announce the engagement of their daughter Amy Renee to Randy Gingrich, son of Nelson and Yvonne Gingrich, of Manheim, Pennsylvania.

Amy was born with classic MSUD on September 13, 1984. She had a liver transplant at Children’s Hospital of Pittsburgh on January 23, 2006. Amy graduated from Warwick High School in 2003 and Consolidated School of Business in 2004. She works as a medical receptionist at Welsh Mountain Medical Center in New Holland.

Randy graduated from Lancaster Mennonite High School in 2004. He works as a truck driver for Four Seasons Produce in Denver, Pennsylvania. Randy is a two-time leukemia survivor.

A June 12, 2010 wedding is planned.



Jimena Graduates Kindergarten!

JimenaIn Argentina, when a child finishes kindergarten there´s a celebration for this (they call them "Egresaditos"). Next year Jimena, who will be 6 years old in February, will start primary school. Jimena is doing very well after almost 3 and a half years post-transplant. Happy New Year for everybody!!! Eduardo Gatica, Father of Jimena








Rachel & Kevin


Rachel & KevinRachel Marie Wenger of Ephrata, PA and Kevin Lamar Martin of Lititz, PA, both 20, plan to marry on June 5, 2010. Rachel has been on the transplant list for 2 years, and hopes to be transplanted before the wedding. Kevin is cousin to Crystal Martin, daughter of Mark and Lorraine, and part of the MSUD community.




Galen Carrington

Galen CarringtonGalen Carrington is 19 yrs old and attends Wilmington College of Ohio. He has classic MSUD and is currently on the liver transplant list. He is a swimmer for Wilmington Quakers and is the 2nd fastest butterflier on the team. His coach Trip Breen has been very supportive and understanding of Galen's condition and his diet. You can visit the Wilmington College of OH's website, click on Athletics and then click team sports, under men's swimming.


My Wedding by Ruth Nolt

September 17, 2009 was the day Lester Nolt and I exchanged wedding vows. We were glad for beautiful weather as my mother’s house was quite full with almost 200 guests.

My levels were just great over the wedding. I must give credit to my parents, Ivan (deceased) and Katie Fox who taught me from childhood to follow my diet closely and to drink all of my formula every day. Without that I couldn’t have done all I did and still do!

I have always enjoyed cooking and baking so that wasn’t too much of a challenge after marriage. I have learned to make a variety of dishes we can both enjoy or I can make two similar dishes.

I am blessed with a patient and understanding oneof- a-kind husband. It isn’t unusual to see him helping me in the kitchen, mixing formula etc. Neither is it unusual for me to ask him how to do this or that in my diet.

I am truly blessed!

Melvin Carruth

This letter is a tribute to my brother Melvin Carruth! We believe he is one of the oldest living African Americans with Maple Syrup Urine Disease.

Read More

NBS-MSUD Connect: Your One-Stop Shop For MSUD Resources

NBS-MSUD Connect was launched as part of the Newborn Screening Connect patient registry (NBS Connect) in 2013 through a partnership between the Department of Human Genetics at Emory University, the Maple Syrup Urine Disease (MSUD) Family Support Group and other key stakeholders.

Read More

Cambrooke Therapeutics

Cambrooke Therapeutics continues to expand its line of delicious and nutritious low protein foods to help improve the lives of individuals with Inborn Errors of Metabolism such as MSUD.

Read More

Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

Read More

Emory Metabolic Camp 2018 Announcement

Join us June 18-23, 2018 for the 24th Annual Metabolic Camp at Emory University in Atlanta, GA!

Read More

From The Chairman’s Desk

As I sit here reflecting on how much the care and treatment of MSUD has changed over the years, my mind goes back to 1978 when our son Keith was born.

Read More

MSUD Advocacy Report

Medical Nutrition Equity Act

The Medical Nutrition Equity Act (MNEA) would require all private insurance plans (state regulated or self-insured/self-funded) and federal health programs, including Children’s Health Insurance Program, Tricare, Medicaid, Medicare, and Federal Employee Health Benefit Plans, to provide coverage for formula and low-protein foods for all children and adults with MSUD.

Read More

The MSUD Family Support Group Is Excited To Announce Their Participation In The Million Dollar Bike Ride

The MSUD Family Support Group is excited to announce their participation in The Million Dollar Bike Ride

Read More

19th Biennial MSUD Symposium

I can’t believe that almost two years have passed and it is time for another MSUD Symposium! I am especially excited about this conference because I’ve built in extra time for social interaction.

Read More

Transform

A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates