Amy & RandyAmy & Randy

Carl and Marty Zimmerman of Lititz, Pennsylvania announce the engagement of their daughter Amy Renee to Randy Gingrich, son of Nelson and Yvonne Gingrich, of Manheim, Pennsylvania.

Amy was born with classic MSUD on September 13, 1984. She had a liver transplant at Children’s Hospital of Pittsburgh on January 23, 2006. Amy graduated from Warwick High School in 2003 and Consolidated School of Business in 2004. She works as a medical receptionist at Welsh Mountain Medical Center in New Holland.

Randy graduated from Lancaster Mennonite High School in 2004. He works as a truck driver for Four Seasons Produce in Denver, Pennsylvania. Randy is a two-time leukemia survivor.

A June 12, 2010 wedding is planned.

Jimena Graduates Kindergarten!

JimenaIn Argentina, when a child finishes kindergarten there´s a celebration for this (they call them "Egresaditos"). Next year Jimena, who will be 6 years old in February, will start primary school. Jimena is doing very well after almost 3 and a half years post-transplant. Happy New Year for everybody!!! Eduardo Gatica, Father of Jimena

Rachel & Kevin

Rachel & KevinRachel Marie Wenger of Ephrata, PA and Kevin Lamar Martin of Lititz, PA, both 20, plan to marry on June 5, 2010. Rachel has been on the transplant list for 2 years, and hopes to be transplanted before the wedding. Kevin is cousin to Crystal Martin, daughter of Mark and Lorraine, and part of the MSUD community.

Galen Carrington

Galen CarringtonGalen Carrington is 19 yrs old and attends Wilmington College of Ohio. He has classic MSUD and is currently on the liver transplant list. He is a swimmer for Wilmington Quakers and is the 2nd fastest butterflier on the team. His coach Trip Breen has been very supportive and understanding of Galen's condition and his diet. You can visit the Wilmington College of OH's website, click on Athletics and then click team sports, under men's swimming.

My Wedding by Ruth Nolt

September 17, 2009 was the day Lester Nolt and I exchanged wedding vows. We were glad for beautiful weather as my mother’s house was quite full with almost 200 guests.

My levels were just great over the wedding. I must give credit to my parents, Ivan (deceased) and Katie Fox who taught me from childhood to follow my diet closely and to drink all of my formula every day. Without that I couldn’t have done all I did and still do!

I have always enjoyed cooking and baking so that wasn’t too much of a challenge after marriage. I have learned to make a variety of dishes we can both enjoy or I can make two similar dishes.

I am blessed with a patient and understanding oneof- a-kind husband. It isn’t unusual to see him helping me in the kitchen, mixing formula etc. Neither is it unusual for me to ask him how to do this or that in my diet.

I am truly blessed!

I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

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From The Editor

Hello to my MSUD family! The power of this family hit home this summer, when Hannah (Classic MSUD age 23 years) and I visited Israel.

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Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

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As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

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A Child's Life

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