| 
Volume 26-2
Fall, 2009

Inside this issue:
  • Editor's Message
  • Norleucine, Dr. Zinnanti
  • New Website
  • 2010 Symposium
  • Nutrition Workshop
  • Jordan's Not A Freshman
  • Nikolai's Advice on College
  • Perseverance by Susan Needleman
  • Early Years of MSUD
  • Diet Wise
  • Tanyia Abel, TPN
  • Mouse Model Update
  • Contacts

Download this issue (pdf, 15.5mb)
 
A Few Words From the Editor Karen Dolins, EdD, RD, CDN
Norleucine - to prevent brain injury in MSUD Dr. William Zinnanti
MSUD Nutrition Workshop and Family Dinner Administrator
No Longer a Freshman! Jordan Bulcher
Living at College with MSUD: Advice From One Who's Been There Nikolai Rudd
A Family's Story - Cindy Blau Marilyn Blau
Where Perseverance Got Me Susan Lynne Needleman
Treating MSUD: The Early Years Karen Dolins
Parenteral Nutrition for Patients with MSUD Tanyia Abel, Pharm.D.
Early Successes in Treating a Mouse Model of Intermediate MSUD Kristen J. Skvorak, Ph.D.
Our Visit with MSUD Families in Central America Joyce Brubacher
 

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

Visit Related Links

Make a donation

DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

Make a Donation

Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

See the Physician Directory

MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

Visit the Forum

MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

See current Events

Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

See the Recipes


© 2009 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

Hosting services provided by MapleData
Footer Logo