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MSUD Symposium 2018
Thursday, June 28, 2018, 07:00am
To Saturday, June 30, 2018
WHEN: June 28-30, 2018

WHERE: Doubletree Greentree, 500 Mansfield Ave Pittsburgh, PA 15205 (located 3 miles from downtown Pittsburgh)

WHO: MSUD families, professionals, researchers, and vendors from the US and throughout the world

WHY: Increase knowledge of MSUD including medical and dietary management, transplant option, research updates, psychosocial issues, advocacy and more. In addition, it is an opportunity to meet new families and renew old friendships. Incorporate the symposium as part of a family vacation!

SCHEDULE: (times subject to change)
Thursday June 28th
7:00PM to 9:00PM
Registration/reception

Friday June 29th
8:00AM to 4:00PM
General session

1:00PM to 4:00PM
Transplant Breakout

Friday June 29th
6:00PM to 9:00PM
Social event for all MSUD families- Gateway Clipper (downtown Pittsburgh) sponsored by Children’s Hospital of Pittsburgh of UPMC

Saturday June 30th
8:30AM to 3:00PM
General session

TOPICS/SPEAKERS:
  • Medical Management
  • NBS- MSUD Connect patient registry
    Rani Singh PhD, RD,LD, Emory University, Atlanta, GA
  • Drug Development
    William Andrews MD, FACP, Acer Therapeutics, Cambridge, MA
  • Amniotic epithelial stem cell transplant
    Stephen Strom PhD Karolinska Instituet, Stockholm, Sweden
  • Metformin study update
    Arvind Ramanathan PhD, Buck Institute Novato, CA
  • Novel treatments for metabolic disorders
    Brian Wamhoff PhD, HemoShear Therapeutics, Charlottesville, Virginia
  • MSUD nutrition management guidelines
    Rani Singh PhD, RD, LD Emory University Atlanta, GA
  • Low protein cooking
    Chef Neil,Vitaflo UK
  • Fundraising
    Ed Fischler and Herb Foster- MSUD parents
  • Advocacy
    Karen Dolins and Chad Farquharson- MSUD parents
  • Living with a Chronic Condition
    Kendra Bjoraker PhD, LP 3:1 Neuropsychology Consultants, Minneapolis, MN
  • Young Adult Panel
  • More to follow...

HOTEL RESERVATIONS: You can make your hotel reservation now online or call the hotel at 412-922-8400 and mention MSUD when you make your reservation. Room rate is $109 per night which includes breakfast for up to 4 people. ($12 per person for additional guests) Rooms have 1 king bed or 2 queen beds. Handicap rooms are available.

HOTEL AMENITIES: The hotel boasts complimentary shuttle service to and from the airport, free parking, 3 restaurants, refrigerators in each room, indoor and outdoor pool and fitness center.

WHAT’S NEW:
  • Two full days of speakers/topics
  • Half day transplant symposium hosted by Pittsburgh transplant team
  • As in the past, attendance at the conference is free, but this year there will be a charge of $25 per person or maximum of $75 per family to help defray the cost of food. This will enable us to invest more on research projects.

MEALS: Low protein food will be available for those on diet

TRAVEL ASSISTANCE: Sarah Malka Dworcan is assisting with grant distribution for Travel Assistance for the upcoming MSUD Symposium. If you, or a family you know would like to apply for help please have them apply through this form. If you have any question you can message me through facebook or email me at: This email address is being protected from spambots. You need JavaScript enabled to view it..

QUESTIONS: Contact Sandy Bulcher, MSUD Symposium Coordinator, at 740-972-5619 or This email address is being protected from spambots. You need JavaScript enabled to view it.
Location Pittsburgh, PA

Hotel Information


DoubleTree by Hilton Hotel Pittsburgh - Green Tree

A 2-minute drive from Interstate 376, this upscale property is 4.5 miles from downtown Pittsburgh.

Flat-screen TVs and WiFi are offered in each room, which feature contemporary decor and custom-designed beds. Chic suites add separate living areas with pull-out sofas.

A restaurant serves buffet breakfast and a la carte meals all day. There's also a sports bar and a cafe offering light meals. Other amenities include an indoor pool, a fitness center, a business center and 40,000 sq ft of meeting space and banquet halls. Parking is free, as is an airport shuttle.

Refrigerators are available in each room.

A block of rooms has been reserved for June 27, 2018 - July 1, 2018. The special room rate will be available until June 7th or until the group block is sold-out, whichever comes first.

RATE OF $109 INCLUDES (4) BREAKFAST COUPONS * ADDITIONAL COUPONS ARE $12.00

make your hotel reservation now online

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