Search

Events Calendar

MSUD Symposium 2018
Thursday, June 28, 2018, 07:00am
To Saturday, June 30, 2018
WHEN: June 28-30, 2018

WHERE: Doubletree Greentree, 500 Mansfield Ave Pittsburgh, PA 15205 (located 3 miles from downtown Pittsburgh)

WHO: MSUD families, professionals, researchers, and vendors from the US and throughout the world

WHY: Increase knowledge of MSUD including medical and dietary management, transplant option, research updates, psychosocial issues, advocacy and more. In addition, it is an opportunity to meet new families and renew old friendships. Incorporate the symposium as part of a family vacation!

SCHEDULE: (times subject to change)
Thursday June 28th
7-9PM
Registration/reception

Friday June 29th
8AM-4:30PM
General session

Friday June 29th
7-9PM
Social event

Saturday June 30th
8AM-3PM
General session

SPEAKERS: To be determined

HOTEL RESERVATIONS: You can make your hotel reservation now via the link on the MSUD website www.msud-support.org or call the hotel at 412-922-8400 and mention MSUD when you make your reservation. Room rate is $109 per night which includes breakfast for up to 4 people. ($12 per person for additional guests) Rooms have 1 king bed or 2 queen beds. Handicap rooms are available.

HOTEL AMENITIES: The hotel boasts complimentary shuttle service to and from the airport, free parking, 3 restaurants, refrigerators in each room, indoor and outdoor pool and fitness center.

WHAT’S NEW:
  • Two full days of speakers/topics
  • Half day transplant symposium hosted by Pittsburgh transplant team
  • As in the past, attendance at the conference is free, but this year there will be a charge of $25 per person or maximum of $75 per family to help defray the cost of food. This will enable us to invest more on research projects.

MEALS: Low protein food will be available for those on diet

TRAVEL ASSISTANCE: It is not yet known whether or not funds will be available to assist with travel expenses. More information to follow in early 2018.

QUESTIONS: Contact Sandy Bulcher, MSUD Symposium Coordinator, at 740-972-5619 or This email address is being protected from spambots. You need JavaScript enabled to view it.
Location Pittsburgh, PA

Hotel Information


DoubleTree by Hilton Hotel Pittsburgh - Green Tree

A 2-minute drive from Interstate 376, this upscale property is 4.5 miles from downtown Pittsburgh.

Flat-screen TVs and WiFi are offered in each room, which feature contemporary decor and custom-designed beds. Chic suites add separate living areas with pull-out sofas.

A restaurant serves buffet breakfast and a la carte meals all day. There's also a sports bar and a cafe offering light meals. Other amenities include an indoor pool, a fitness center, a business center and 40,000 sq ft of meeting space and banquet halls. Parking is free, as is an airport shuttle.

Refrigerators are available in each room.

A block of rooms has been reserved for June 27, 2018 - July 1, 2018. The special room rate will be available until June 7th or until the group block is sold-out, whichever comes first.

RATE OF $109 INCLUDES (4) BREAKFAST COUPONS * ADDITIONAL COUPONS ARE $12.00

Cambrooke Foods Hosts Local Event

Cambrooke has been doing cooking demonstrations, social meet ups and educational events for patients, their families and the clinician’s that support them for many years.

Read More

Fundraising

In the 2016 survey of the membership of the MSUD Family Support Group, research for improved treatments and potential cure was rated “most important” by 90% of the responding members.

Read More

Advocacy

As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

Read More

Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

Read More

Indigo Charlie Mays - Variant MSUD Age 4

Meet our girl Indigo Charlie Mays. After a smooth pregnancy and delivery, she was born on July 21st, 2013 in Seattle, WA.

Read More

NBS-MSUD Connect: Advancing MSUD Research And More

NBSCONNECT.ORG

Rare disease registries have received attention in recent years because of the many ways in which they can benefit the rare disease community.

Read More

Transform

A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates