This list of low protein products is intended as a reference and resource for parents and others involved with the care of persons with maple syrup urine disease (MSUD). Although not all-inclusive, information is believed to be correct as of October 2003. This dietary related information was updated May 2004. All dietary decisions should be made in consultation with medical professionals—contact your physician or registered dietitian (nutritionist).

Food Products

Low Protein School Lunch Program: Cambrooke has designed a new program which features the medical forms, menus, nutritional information and recipes to guide parents and school Food Service Departments through the process of supplying children with a nutritious low protein lunch. Contact them for a copy.

Cooking Demonstrations: Clinics and metabolic groups can contact Cambrooke Foods to schedule a low protein food demonstration which features products from Cambrooke Foods.

Cambrooke Foods has the Camino pro^TM metabolic formula for MSUD: The Camino pro^TM drinks and sorbet stix are single serve and complete with vitamins and minerals. They are designed to fit your lifestyle and offer many nutritional bonuses to meet today's nutritional guidelines and make getting your protein throughout the day easier and tastier.

Send a note from your doctor or dietitian giving Cambrooke permission to send you a Camino pro^TM sample. Get more information on products here.

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Nutritional Resources

ForMyDiet.com
The mission of the founders of ForMyDiet.com, Ami and Laura Assayag is to create web and PDA (personal digital assistant) diet management technology to answer the needs of people with chronic disorders requiring dietary restrictions, like MSUD. As a first step toward that goal, the ForMyDiet.com web site was launched to provide help with diet management. The complete online and PDA diet management services are not developed yet, but www.ForMyDiet.com currently includes other useful tools and information:

• Food lists and calculators with protein and leucine information


• Community message boards to share experiences with others


• Scales, breadmakers and other small appliances


• Information about specific disorders


• Low protein recipes


• A unique weekly cartoon

ForMyDiet.com will soon add a database where nutritional information on low protein foods from vendors is listed for easy searching and quick nutrient calculations. The list of foods is extensive and is useful with the leucine amounts listed. Keep checking this web site for additional information and items: www.ForMyDiet.com

NutritionData
NutritionData generates nutrition facts labels and provides simplified nutritional analyses for all foods and recipes. Has excellent search feature. It is a great resource for information on low-protein food values and lists 999 foods low in leucine. Check this web site: www.Nutritiondata.com.

Bowes and Church's Food Values of Portions Commonly Used
Eighteenth Edition, revised by Jean A.T. Pennington Ph.d, R.D.;March 2004, published by Lippincott, Williams & Wilkins.

For a complete nutritional reference book, order this book used by dietitians. It has the complete nutrient content of almost all foods and includes leucine other amino acid values.

The Bowes and Church's Food Values of Portions Commonly Used is available from Barnes & Noble Booksellers online, or by calling the nearest Barnes & Noble and ordering it by phone. If you access the Barnes & Noble Web-site www.barnesandnoble.com you can find the location and contact information for the store nearest you. It can also be ordered from Walden Books, and it is available online from Amazon.com. A very valuable and helpful book for families and adults dealing with MSUD and other metabolic diseases.

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MSUD Food List Booklet

Dr. Rani Singh (a nutritionist at Emory University, Atlanta, Georgia) and colleagues compiled a handy, pocket-sized booklet designed especially for persons with MSUD. It lists a large number of foods with the measurement, weight, calories, protein, leucine, and number of exchanges for each food. The information in this compact 40-page 4" x 6" booklet also includes: how to figure exchanges and understand food labels, how to determine leucine values when protein only is listed, lists of free foods and foods to avoid, a sample menu and more. The cost for this MSUD Food List booklet is $10. This is a great, quick reference of a wide variety of foods. Click here for order form (PDF).

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Teacher's Guide

The Arizona Department of Health Services has a "Teacher's Guide to MSUD" available for $2.50 each. This new guide booklet is ideal to give to the teachers of children with MSUD. Make checks payable to the Arizona Department of Health Services. Send a note requesting the booklet to:

Arizona Department of Health Services
Nutrition & Chronic Disease Prevention Services
150 North 18th Ave. #310
Phoenix, AZ 85007-3228
Attn: Lee Renda

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Low Protein Cookbooks

Low Protein Cookery for PKU, Third Edition
$29.95 plus $4.50 shipping. Out of U.S.A. orders add $5.50 shipping. Add $1 shipping for each additional book (U.S. funds only). Illinois residents add 8.75% sales tax. Canada add 7% GST. Make check payable to University of Chicago Distribution Center and send to:

University of Chicago Distribution Center
11030 S. Langley Avenue
Chicago, IL 60628
Phone: 800-621-2736

NEW: Labels for PKU Cookbook
Irene Brakus, the grandmother of a child with MSUD, did an excellent job of making labels containing valuable information for the second and third editions of Low Protein Cookery for PKU. Each label lists the page number, the name of the recipe, the exact amount of leucine, isoleucine, valine and protein, and the number of calories in a serving size. The label also lists a CF which stands for conversion factor. Multiply the amount in a serving by the CF number to find the amount in the whole recipe. This is especially handy when making larger or smaller servings. These labels are made to attach to each recipe in the cookbook and provide all you need to make the cookbook as useful for MSUD as for PKU. Order these from Ms. Brakus at no charge.

Ms. Irene O Brakus
1900 Lakeside Ave. NW
Canton, OH 44708-2950
Phone:  330-580-9221
E-mail:  ibrakus@yahoo.com

Nutrient Content of Recipes from Low Protein Cookery for PKU
This was adapted for diet treatment for MSUD lists leucine, isoleucine and valine values for each recipe in the cookbook. Available from author, Virginia Schuett for $8. Make checks payable to National PKU News. Send to:

National PKU News
6869 Woodlawn Avenue, NE#116
Seattle, WA 98115

Books Available From SHS

• Low Protein Bread Machine Baking for PKU — $18


• New 2nd Edition—Low protein Food List for PKU — $50

SHS North America
PO Box 117
Gaithersburg, MD 20884
Phone: 888-567-7646
Fax: 301-795-2301
E-mail: pkubooks@SHSNA.com

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Other Items

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Formulas (Medical Foods)
Information about formulas is provided for reference only. Consult physicians, registered dietitians (nutritionists), or other medical professionals about dietary matters.

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