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If you still have questions about MSUD after reviewing the information on this website, contact the appropriate person on this page.


Resource Persons

   

Medical Advisors

   

Nutritional Advisors

For organizational information, printed material or addition to our mailing list:

Sandy Bulcher, President
Powell, Ohio
740-972-5619
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For donations:

Dave Bulcher, Treasurer
9517 Big Bear Ave
Powell, OH 43065
740-972-5618
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Advocacy:

Jordann Coleman
Advocacy Chair
Concord, CA
925-349-4601
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For inquiries in Spanish:

Adriana Carbajel (MSUD parent)
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480-278-4713

Vanessa Funes (MSUD adult)
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508-654-2644

Please join the Spanish speaking MSUD Family Support Group by emailing the eGroup at This email address is being protected from spambots. You need JavaScript enabled to view it.

For newsletter submissions:

Karen Dolins, EdD, RD
Newsletter Editor
Scarsdale, New York
914-723-5458
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Holmes Morton, M.D.
Founding Pediatrician
Central Pennsylvania Clinic, A Medical Home for Special Children & Adults
PO Box 5806
4527 East Main Street
Suite E
Belleville, PA 17004

Melissa Wasserstein, MD
Chief, Division of Pediatric Genetic Medicine
Children’s Hospital at Montefiore
Associate Professor Albert Einstein College of Medicine
Bronx, NY
718-741-2318

Harvey L. Levy, MD
Senior Physician in Medicine and Genetics
Division of Genetics and Genomics
Boston Children's Hospital
Professor of Pediatrics
Harvard Medical School
One Autumn Street, Rm 526.1
Boston, MA 02115
617-355-6346
Fax: 617-730-4856
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Can Ficicioglu, M.D., Ph.D.
Associate Professor of Pediatrics
Perelman School of Medicine at the University of Pennsylvania
The Children’s Hospital of Philadelphia
Division of Human Genetics/Metabolism
Director, Newborn Screening Program
Director, Lysosomal Storage Disorders Program
3501 Civic Center Blvd #9054
Philadelphia, PA 19104
215- 590-3376
Fax: 215-590-4297

Jessica Scott Schwoerer, M.D.
Assistant Professor Dept of Pediatrics, Division of Genetics and Metabolism
University of Wisconsin Hospital and Clinics/ Waisman Center
1500 Highland Ave Rm 341
Madison, WI 53705-2280
Office (608) 263-5497

Rani Singh, Ph.D., R.D.
Emory University
Div. of Medical Genetics
2040 Ridgewood Dr.
Atlanta, GA 30322
404-778-8519
Fax: 404-778-8562

Sandy vanCalcar, PhD, RD
Child Development & Rehabilitation Center
Oregon Health and Science University
3181 SW Sam Jackson Rd
Portland, OR 97239
503-494-5500
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MSUD Family Support Group Board


President:
Sandy Bulcher, OH

Vice President:
Ed Fischler, FL

Treasurer:
Dave Bulcher, OH

Secretary:
Karen R. Dolins, NY

Other board members:
Ivan Martin, OH
Herb Foster, MA
Jordann Coleman, CA

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