Search

If you still have questions about MSUD after reviewing the information on this website, contact the appropriate person on this page.


Resource Persons

   

Medical Advisors

   

Nutritional Advisors

For organizational information, printed material or addition to our mailing list:

Sandy Bulcher, Vice President
Powell, Ohio
740-972-5619
This email address is being protected from spambots. You need JavaScript enabled to view it.

For donations:

Dave Bulcher, Treasurer
Powell, Ohio
740-972-5618
This email address is being protected from spambots. You need JavaScript enabled to view it.

For legislative & educational issues:

Marcia Hubbard
Corresponding Secretary
Cedar Hill, Missouri
314-277-8168
This email address is being protected from spambots. You need JavaScript enabled to view it.

Advocacy:

Jordann Coleman
Advocacy Chair
Concord, CA
925-349-4601
This email address is being protected from spambots. You need JavaScript enabled to view it.

For inquiries in Spanish:

Vanessa Funes (MSUD adult)
This email address is being protected from spambots. You need JavaScript enabled to view it.
508-596-0672

Please join the Spanish speaking MSUD Family Support Group by emailing the eGroup at This email address is being protected from spambots. You need JavaScript enabled to view it.

For newsletter submissions:

Karen Dolins, EdD, RD
Newsletter Editor
Scarsdale, New York
914-723-5458
This email address is being protected from spambots. You need JavaScript enabled to view it.
Holmes Morton, M.D.
Founding Pediatrician
Central Pennsylvania Clinic, A Medical Home for Special Children & Adults
PO Box 5806
4527 East Main Street
Suite E
Belleville, PA 17004

Melissa Wasserstein, MD
Chief, Division of Pediatric Genetic Medicine
Children’s Hospital at Montefiore
Associate Professor Albert Einstein College of Medicine
Bronx, NY
718-741-2318

Susan C. Winter
, MD
Dir., Med. Genetics/Metabolism
Valley Children's Hospital
9300 Valley Children's Place
Madera, CA 93638
559-353-6400
Fax: 559-353-7213
This email address is being protected from spambots. You need JavaScript enabled to view it.

Neil R. M. Buist
, MD
Professor Emeritus
Pediatrics and Medical Genetics
Oregon Health & Science University
This email address is being protected from spambots. You need JavaScript enabled to view it.

Rani Singh, Ph.D., R.D.
Emory University
Div. of Medical Genetics
2040 Ridgewood Dr.
Atlanta, GA 30322
404-778-8519
Fax: 404-778-8562

Sandy vanCalcar, PhD, RD
Child Development & Rehabilitation Center
Oregon Health and Science University
3181 SW Sam Jackson Rd
Portland, OR 97239
503-494-5500
This email address is being protected from spambots. You need JavaScript enabled to view it.

MSUD Family Support Group Board

President
Ivan Martin, PA

Vice President
Sandy Bulcher, OH

Treasurer
Dave Bulcher, OH

Secretary
Karen R. Dolins, NY
Ed Fischler, VA
Jennifer Saunders, AZ
Herb Foster, MA

Sweet Odyssey

Artur Santos was born on January 18, 2002, the second son of Soraya and Idario Santos. They never imagined how their lives were about change as the second baby arrived.

Read More

MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

Read More

My Trip To Israel

I met Avi, Dikla, and Tamar Starr last year at the MSUD Symposium in Raleigh, NC. Tamar, classic MSUD, was 2 ½ at the time, and they invited me to come to Israel and stay with them for a year.

Read More

I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

Read More

MSUD Awareness Day

Now more than ever before we are hearing about National Awareness Days which are set by organizations or the government to bring attention to issues of importance.

Read More

Advocacy

As our legislators headed home for their August break, Rare Disease Legislative Advocates got busy.

Read More

Transform

A Child's Life

Subscribe to our mailing list

Signup To Our Newsletter Signup with your email address to receive news and updates