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If you still have questions about MSUD after reviewing the information on this website, contact the appropriate person on this page.


Resource Persons

   

Medical Advisors

   

Nutritional Advisors

For organizational information, printed material or addition to our mailing list:

Sandy Bulcher, Vice President
Powell, Ohio
740-972-5619
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For donations:

Dave Bulcher, Treasurer
Powell, Ohio
740-972-5618
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For legislative & educational issues:

Marcia Hubbard
Corresponding Secretary
Cedar Hill, Missouri
314-277-8168
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Advocacy:

Jordann Coleman
Advocacy Chair
Concord, CA
925-349-4601
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For inquiries in Spanish:

Vanessa Funes (MSUD adult)
This email address is being protected from spambots. You need JavaScript enabled to view it.
508-596-0672

Please join the Spanish speaking MSUD Family Support Group by emailing the eGroup at This email address is being protected from spambots. You need JavaScript enabled to view it.

For newsletter submissions:

Karen Dolins, EdD, RD
Newsletter Editor
Scarsdale, New York
914-723-5458
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Holmes Morton, M.D.
Founding Pediatrician
Central Pennsylvania Clinic, A Medical Home for Special Children & Adults
PO Box 5806
4527 East Main Street
Suite E
Belleville, PA 17004

Melissa Wasserstein, MD
Chief, Division of Pediatric Genetic Medicine
Children’s Hospital at Montefiore
Associate Professor Albert Einstein College of Medicine
Bronx, NY
718-741-2318

Harvey L. Levy, MD
Senior Physician in Medicine and Genetics
Division of Genetics and Genomics
Boston Children's Hospital
Professor of Pediatrics
Harvard Medical School
One Autumn Street, Rm 526.1
Boston, MA 02115
617-355-6346
Fax: 617-730-4856
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Rani Singh, Ph.D., R.D.
Emory University
Div. of Medical Genetics
2040 Ridgewood Dr.
Atlanta, GA 30322
404-778-8519
Fax: 404-778-8562

Sandy vanCalcar, PhD, RD
Child Development & Rehabilitation Center
Oregon Health and Science University
3181 SW Sam Jackson Rd
Portland, OR 97239
503-494-5500
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MSUD Family Support Group Board

President
Ivan Martin, PA

Vice President
Sandy Bulcher, OH

Treasurer
Dave Bulcher, OH

Secretary
Karen R. Dolins, NY
Ed Fischler, VA
Jennifer Saunders, AZ
Herb Foster, MA

Adjusting Protein In An Adult With MSUD

A little over a year ago, in January, Jeff was just not himself. He had limited energy, was not eating well, and often appeared slightly agitated.

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From The Chairman’s Desk

On July the 21st the MSUD Board of Directors traveled to Bethesda, Maryland for our annual Board meeting. We stayed at the Hyatt Regency in Bethesda.

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I want to help out, but I don’t know how

Have you ever wanted to help out the MSUD Family Support Group but were unsure about how to contribute? The MSUD Family Support Group is actively looking for volunteers to assist with advocacy and fundraising efforts.

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Metformin As A Possible Therapeutic Agent In The Treatment Of MSUD

The MSUD Family Support Group has provided funds to Buck Institute for its preliminary studies investigating metformin

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Updates To Nutrition Management Guidelines

The Nutrition Management Guideline for MSUD was first published in 2014. Since that time, there have been reports of new research and experiences that have prompted updates of the guideline.

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MSUD Advocacy Update

Healthcare and issues facing the rare disease community have been at the forefront of national conversations over the past 6 months.

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Transform

A Child's Life

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