Welcome to the MSUD Family Support Group
The MSUD Family Support Group is a non-profit 501 (c)(3) organization for those with MSUD and their families and includes health-care professionals and others interested in MSUD. Parent interest in support and information prompted the first MSUD Symposium for families and professionals in 1982.
It was at this first Symposium that the families discussed the need for an organized support group. Symposiums are held biennially and are usually planned by the families with the help and support of their medical clinics.
In 1983 the first MSUD Newsletter was printed and distributed throughout the United States and Canada. The Newsletter continues to provide the latest information on the treatment of the disorder, reports on the latest research, current diet information, family news and related topics.
The MSUD Family Support Group membership now includes families and professionals worldwide. This growing organization continues to develop resources to meet its goals of support and education. Informed families and professionals can provide better care for the child with MSUD. Treatment has improved and the future continues to brighten for these children and their families.
The MSUD Family Support Group is dedicated to:
- Providing opportunities for support and personal contact for those with MSUD and their families.
- Distributing information and raising public awareness of MSUD.
- Strengthening the liaison between families and professionals.
- Supporting newborn screening programs and research for MSUD.
Visit our MSUD contacts page.