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Anna Elizabeth Moyer

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Anna Elizabeth Moyer found a way to help and support children with MSUD and their families...

Volume 31-2

A Silver Lining...

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Fortunately, much has changed in the past 25 years and the diagnosis of maple syrup urine ...

Volume 31-2


Welcome to the MSUD Family Support Group

The MSUD Family Support Group
is a non-profit 501 (c)(3) organization for those with MSUD and their families and includes health-care professionals and others interested in MSUD. Parent interest in support and information prompted the first MSUD Symposium for families and professionals in 1982.

It was at this first Symposium that the families discussed the need for an organized support group. Symposiums are held biennially and are usually planned by the families with the help and support of their medical clinics.

In 1983 the first MSUD Newsletter was printed and distributed throughout the United States and Canada. The Newsletter continues to provide the latest information on the treatment of the disorder, reports on the latest research, current diet information, family news and related topics.

The MSUD Family Support Group membership now includes families and professionals worldwide. This growing organization continues to develop resources to meet its goals of support and education. Informed families and professionals can provide better care for the child with MSUD. Treatment has improved and the future continues to brighten for these children and their families.

The MSUD Family Support Group is dedicated to:
  • Providing opportunities for support and personal contact for those with MSUD and their families.
  • Distributing information and raising public awareness of MSUD.
  • Strengthening the liaison between families and professionals.
  • Supporting newborn screening programs and research for MSUD.

Visit our MSUD contacts page.

 

Related Links

Related linksFollow MSUD related links for more information about specific topics. These include information on diet, nutritions, medical foods, associations, organizations and research.

Visit Related Links

Make a donation

DonationThe MSUD Family Support Group is a 501(c)(3) non-profit organization with no paid staff. Funds are needed for genetics research, diet, related behaviors and on-going studies for improved treatment.

Make a Donation

Physician Network

Physician networkHelp introduce your primary professionals. Currently we are in need of contacts for the following locations: India, United Kingdom, Australia, USA (Midwest), South America.

See the Physician Directory

MSUD Forum

Have a sayOpen to members only, the official MSUD forum is the place for sharing knowledge and asking questions. We encourage members to use this resource for better management of MSUD.

Visit the Forum

MSUD Events

Current eventsGet up, get out. Find local events in your town or across the world. Find something fun, informative, and healthy to enjoy. Browse the listings, or post an event in your location.

See current Events

Diet Wise

Low Protein FoodsBrowse the various recipes for low-protein foods and information. You can also submit your own receipe to share with our MSUD community.

See the Recipes


© 2013 MSUD Family Support Group

The information presented on this web site is for educational purposes. It does not replace medical consultation. The MSUD (Maple Syrup Urine Disease) Family Support Group is not liable for the application of this information or any errors therein.

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